Menon Janaki, Thuruthiyath Nithya, Kannankulangara Anugraha, Kolady Rohini
Department of Pediatrics, Government Medical College, Thrissur, Kerala, India.
Department of Community Medicine, Karuna Medical College, Palakkad, Kerala, India.
Indian J Pediatr. 2021 May;88(5):476-478. doi: 10.1007/s12098-020-03494-7. Epub 2020 Sep 23.
A cross-sectional questionnaire-based study was conducted on 38 children with idiopathic nephrotic syndrome. The prevalence and pattern of behavioral abnormalities was studied. Except in the conduct domain, the prevalence of behavioral problems was comparable with controls. Severe complications of disease and adverse drug effects were significantly associated with abnormal behavior. The Quality of life (QOL) of these children and their caregivers was assessed. It appeared to be unaffected by illness. Additional findings were high maternal literacy, no disruption of schooling, regular follow-up and good adherence to treatment. Behavioral problems in childhood nephrotic syndrome can be minimized by regular follow-up and supportive interventions to reduce caregiver burden. Such children and their caregivers can do well in terms of QOL, even in a resource-poor setting, with appropriate psycho-social support.
对38名特发性肾病综合征患儿进行了一项基于问卷调查的横断面研究。研究了行为异常的患病率和模式。除品行领域外，行为问题的患病率与对照组相当。疾病的严重并发症和药物不良反应与行为异常显著相关。评估了这些儿童及其照顾者的生活质量（QOL）。结果显示其未受疾病影响。其他发现包括母亲识字率高、未中断学业、定期随访以及良好的治疗依从性。通过定期随访和支持性干预以减轻照顾者负担，可将儿童肾病综合征的行为问题降至最低。在适当的心理社会支持下，即使在资源匮乏的环境中，此类儿童及其照顾者的生活质量也可以良好。
