Hacettepe University Faculty of Nursing, Psychiatric Nursing Department, 06100, Sıhhiye- Ankara, Turkey.
Ministry of Health Ankara City Hospital Ankara, Turkey.
Eur J Oncol Nurs. 2020 Oct;48:101832. doi: 10.1016/j.ejon.2020.101832. Epub 2020 Sep 13.
Family caregivers are critical sources of support to cancer survivors, but they also need to cope with the distress brought by the caregiving process. This study ascertained the resilience levels of the family caregivers of cancer survivors and then examined the relations between resilience, caregiver burden, and quality of life.
This descriptive cross-sectional study was conducted between June and October 2019. The participants were recruited from the oncology ward of a hospital in Turkey. The Connor-Davidson Resilience Scale, Zarit Burden Interview, and Caregiver Quality of Life Index- Cancer were used to collect data from 210 family caregivers of cancer survivors.
The caregivers reported low levels of resilience (49.63 ± 16.30, range = 0-100), which we found to be associated with great caregiver burden (range = -0.39 to -0.63, all P < 0.01 or 0.05) and poor quality of life (range = 0.31-0.75, all P < 0.01 or 0.05). The findings showed that resilience negatively mediated the caregiver burden (β = 0.203; 95% CI, - 0.374-0.018) and positively predicted the QoL (β = 0.431; 95% CI, 0.683-0.207). The total effects of CDRS on burden and QoL were 0.203 (CI = - 0.374-0.018) and 0.431 (CI = - 0.683-0.207) respectively.
The present findings underscore the direct and indirect predicting role of resilience on QoL and caregiver burden. The family caregivers reported low levels of resilience, which in turn was associated with greater caregiver burden and poorer QoL.
家庭照顾者是癌症幸存者的重要支持来源，但他们也需要应对照顾过程带来的困扰。本研究旨在确定癌症幸存者家庭照顾者的适应力水平，然后考察适应力、照顾者负担和生活质量之间的关系。
这是一项描述性的横断面研究，于 2019 年 6 月至 10 月进行。参与者从土耳其一家医院的肿瘤病房招募。使用 Connor-Davidson 适应力量表、Zarit 负担访谈和照顾者癌症生活质量指数收集 210 名癌症幸存者家庭照顾者的数据。
照顾者报告适应力水平较低（49.63±16.30，范围=0-100），我们发现这与照顾者负担较大（范围=-0.39 至-0.63，均 P<0.01 或 0.05）和较差的生活质量（范围=0.31-0.75，均 P<0.01 或 0.05）有关。研究结果表明，适应力负向调节照顾者负担（β=0.203；95%置信区间，-0.374-0.018），并正向预测生活质量（β=0.431；95%置信区间，0.683-0.207）。CDRS 对负担和生活质量的总效应分别为 0.203（CI=-0.374-0.018）和 0.431（CI=-0.683-0.207）。
本研究结果强调了适应力对生活质量和照顾者负担的直接和间接预测作用。家庭照顾者报告适应力水平较低，这反过来又与照顾者负担更大和生活质量更差有关。
