College of Nursing and Health Sciences, Flinders University, Adelaide, Australia.
John Walsh Centre for Rehabilitation Research, Faculty of Medicine and Health, The University of Sydney, Sydney, Australia.
Qual Life Res. 2021 Feb;30(2):555-565. doi: 10.1007/s11136-020-02649-5. Epub 2020 Sep 29.
To identify the salient quality of life characteristics relevant to older people in receipt of community aged care services in order to develop dimensions for a draft descriptive system for a new preference-based quality of life instrument.
Forty-one in-depth semi-structured interviews were undertaken with older people (65 years and over) receiving community aged care services across three Australian states to explore quality of life characteristics of importance to them. The data were analysed using framework analysis to extract broader themes which were organised into a conceptual framework. The data were then summarised into a thematic chart to develop a framework matrix which was used to interpret and synthesise the data. Care was taken throughout to retain the language that older people had adopted during the interviews to ensure that appropriate language was used when identifying and developing the quality of life dimensions.
The analysis resulted in the identification of five salient quality of life dimensions: independence, social connections, emotional well-being, mobility, and activities.
This research finds that quality of life for older people accessing aged care services goes beyond health-related quality of life and incorporates broader aspects that transcend health. The findings represent the first stage in a multiphase project working in partnership with older people to develop a new preference-based instrument of quality of life for informing quality assessment and economic evaluation in community aged care. In future work, draft items will be developed from these dimensions and tested in face validity interviews before progressing to further psychometric testing.
确定接受社区老年护理服务的老年人相关的主要生活质量特征，以便为新的基于偏好的生活质量工具的描述性系统草案开发维度。
在澳大利亚三个州，对 41 名接受社区老年护理服务的老年人（65 岁及以上）进行了 41 次深入的半结构化访谈，以探讨对他们重要的生活质量特征。使用框架分析对数据进行分析，以提取更广泛的主题，并将其组织到概念框架中。然后将数据总结到主题图表中，以开发框架矩阵，用于解释和综合数据。在整个过程中，我们都注意保留老年人在访谈中使用的语言，以确保在识别和开发生活质量维度时使用适当的语言。
分析结果确定了五个主要的生活质量维度：独立性、社会联系、情绪健康、流动性和活动。
这项研究发现，接受老年护理服务的老年人的生活质量不仅仅是与健康相关的生活质量，还包含了更广泛的超越健康的方面。研究结果代表了与老年人合作开发新的基于偏好的生活质量工具的多阶段项目的第一阶段，该工具用于为社区老年护理的质量评估和经济评估提供信息。在未来的工作中，将从这些维度中开发草案项目，并在进行进一步的心理测量测试之前进行正面有效性访谈测试。
