Centre for Health Evaluation & Research/Infosaude - National Association of Pharmacies (CEFAR/IS-ANF), Rua Marechal Saldanha 1, 1249-069, Lisbon, Portugal.
BMC Health Serv Res. 2020 Oct 2;20(1):914. doi: 10.1186/s12913-020-05765-7.
In 2017, ostomy patients gained access to ostomy products in community pharmacies that are fully reimbursed by the Portuguese National Health Service. This impacted the daily lives of people with ostomy and opened a new market of products and services for pharmacies. However, little is known about the sociodemographic and clinical profile of ostomy patients. This study aims to characterize people with ostomy and their caregivers, evaluate access and satisfaction with the pharmacy and explore participants' expectations regarding services and counselling.
This was an observational, cross-sectional, multicentre study involving pharmacy users who acquired ostomy products in Portuguese community pharmacies. Data were collected through a confidential self-report questionnaire between June and August 2019.
Approximately 56% of the participants were ostomy patients, of whom 65.9% were men. The average age of participating ostomy patients was 65.5 years old (SD = 12.9), and near 80% were retired/pensioners. Caregivers were mostly women (81.7%). More than half of the caregivers were employed and acquired products for a direct family member. Three in every four surgical interventions were consequences of cancer. Intestinal ostomy was the most common intervention (78.3%). More than 93% were satisfied with the acquisition of ostomy products at the pharmacy. Approximately 48.2% of ostomy patients received care from a specialized nurse.
This study describes the profile of people with ostomy and their caregivers who attend community pharmacies in Portugal. Participants' perceptions of the utility of different proposed services and pharmacist knowledge, as well as the low coverage of ostomy nursing care, highlight the opportunity for an extended role of pharmacists among this group.
2017 年，造口患者可以在葡萄牙国家卫生服务系统全额报销的社区药店获得造口产品。这影响了造口患者的日常生活，并为药店开辟了一个新的产品和服务市场。然而，人们对造口患者的社会人口学和临床特征知之甚少。本研究旨在描述造口患者及其护理人员的特征，评估他们对药店的获取和满意度，并探讨参与者对服务和咨询的期望。
这是一项观察性、横断面、多中心研究，涉及在葡萄牙社区药店购买造口产品的药店使用者。数据是通过 2019 年 6 月至 8 月期间的一份机密自我报告问卷收集的。
约 56%的参与者是造口患者，其中 65.9%是男性。参与造口患者的平均年龄为 65.5 岁（标准差=12.9），近 80%是退休/养老金领取者。护理人员大多是女性（81.7%）。超过一半的护理人员有工作，并且为直系亲属购买产品。三分之二的手术干预是癌症的后果。肠造口是最常见的干预措施（78.3%）。超过 93%的人对在药店购买造口产品感到满意。大约 48.2%的造口患者接受了专科护士的护理。
本研究描述了在葡萄牙社区药店就诊的造口患者及其护理人员的特征。参与者对不同拟议服务的实用性的看法以及药剂师的知识，以及造口护理的低覆盖率，突出了药剂师在这一群体中的扩展作用的机会。
