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2
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10
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“他们清楚自己在参与什么：”研究人员直面艾滋病病毒研究在线招募的益处与挑战。

"They know what they are getting into:" Researchers confront the benefits and challenges of online recruitment for HIV research.

作者信息

Bragard Elise, Fisher Celia B, Curtis Brenda L

机构信息

Department of Psychology, Fordham University, Bronx, NY.

Center for Ethics Education and Department of Psychology, Fordham University, Bronx, NY.

出版信息

Ethics Behav. 2020;30(7):481-495. doi: 10.1080/10508422.2019.1692663. Epub 2019 Nov 27.

DOI:10.1080/10508422.2019.1692663
PMID:33041608
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7539627/
Abstract

Online research has become a critical recruitment modality for understanding and reducing health disparities among hidden populations most at risk for HIV infection. There is a lack of consensus and guidelines for the responsible conduct of online recruitment for HIV risk populations. Using semi-structured phone interviews, this study drew on the experiences of principal investigators (PIs) engaged in online HIV research to illuminate scientific and ethical benefits and challenges of social media recruitment. Using Thematic Analysis five major themes emerged: sampling advantages and disadvantages; challenges of data integrity; control of privacy protections; researcher competence and responsibility; and resources.

摘要

在线研究已成为一种关键的招募方式，用于了解和减少感染艾滋病毒风险最高的隐蔽人群中的健康差距。对于针对艾滋病毒风险人群进行负责任的在线招募，目前缺乏共识和指导方针。本研究通过半结构化电话访谈，借鉴了从事在线艾滋病毒研究的主要研究者（PI）的经验，以阐明社交媒体招募在科学和伦理方面的益处与挑战。通过主题分析，出现了五个主要主题：抽样的优缺点；数据完整性的挑战；隐私保护的控制；研究者的能力与责任；以及资源。