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对癌症患儿兄弟姐妹经历的系统评价

A Systematic Review of the Experiences of Siblings of Children With Cancer.

作者信息

Yang Hui-Chuan, Mu Pei-Fan, Sheng Ching-Ching, Chen Yi-Wei, Hung Giun-Yi

机构信息

Author Affiliations: School of Nursing (Mrs Yang and Dr Mu), School of Medicine (Drs Chen and Hung), and Taiwan Joanna Briggs Institute Collaborating Center (Dr Mu), National Yang-Ming University; School of Nursing, Hungkuang University (Mrs Yang); and Department of Nursing (Mrs Sheng), Cancer Center (Dr Chen), and Division of Pediatric Hematology and Oncology (Dr Hung), Taipei Veterans General Hospital, Taiwan, Republic of China.

出版信息

Cancer Nurs. 2016 May-Jun;39(3):E12-21. doi: 10.1097/NCC.0000000000000258.

Abstract

BACKGROUND

When there is a child with cancer in the family, the entire family is affected. Childhood cancer is a highly stressful experience that affects the adaptation of family member to psychosocial tasks. Many of the family stresses and changes that accompany childhood cancer have a severe impact on siblings. An understanding of the experiences and needs of such siblings is vital.

OBJECTIVE

The aim of this study was to understand the nature of the overall experiences of a child who has a brother or sister with cancer.

METHODS

Searches of CINAHL, MEDLINE/PubMed, Science Direct, Scopus, Eric, and Chinese electronic periodical services identified 10 qualitative studies that were published between 1960 and 2013. An appraisal of the primary studies was carried out using the Joanna Briggs Institute Qualitative Assessment and Review Instrument.

RESULTS

Siblings of children with cancer were found to have experienced 4 themes: (1) the disintegration of life, (2) marginalization within their family relationships, (3) self-transcendence during the normalization of family relationships, and (4) maintenance of family integrity and family normality.

CONCLUSIONS

Siblings of children with cancer experience a great deal of chaos in their family life, and this affects their self-esteem and family intimacy. Being with the sick child may help siblings understand the sick child's suffering and experiences.

IMPLICATIONS FOR PRACTICE

The findings of this review provide evidence to help health professionals to assess the needs of the siblings to enhance their sense of self within the family. Providing the siblings with suitable resources should result in better adjustment.

摘要

背景

当家庭中有患癌症的儿童时,整个家庭都会受到影响。儿童癌症是一种压力极大的经历,会影响家庭成员对心理社会任务的适应。许多伴随儿童癌症而来的家庭压力和变化对其兄弟姐妹有严重影响。了解这些兄弟姐妹的经历和需求至关重要。

目的

本研究的目的是了解有患癌症兄弟姐妹的儿童的总体经历的本质。

方法

检索CINAHL、MEDLINE/ PubMed、科学Direct、Scopus、Eric和中国电子期刊服务数据库,确定了1960年至2013年间发表的10项定性研究。使用乔安娜·布里格斯研究所定性评估和审查工具对这些主要研究进行了评估。

结果

发现患癌症儿童的兄弟姐妹经历了4个主题:(1)生活的瓦解;(2)家庭关系中的边缘化;(3)家庭关系正常化过程中的自我超越;(4)家庭完整性和家庭正常状态的维持。

结论

患癌症儿童的兄弟姐妹在家庭生活中经历了大量混乱,这影响了他们的自尊和家庭亲密感。与患病儿童在一起可能有助于兄弟姐妹理解患病儿童的痛苦和经历。

对实践的启示

本综述的结果提供了证据,以帮助卫生专业人员评估兄弟姐妹的需求,增强他们在家庭中的自我意识。为兄弟姐妹提供合适的资源应会带来更好的适应。

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