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临终关怀作为一种学习环境:对姑息治疗团队的后续研究。

The Hospice as a Learning Environment: A Follow-Up Study with a Palliative Care Team.

机构信息

Department of Philosophy, Sociology, Pedagogy and Applied Psychology (FISPPA), University of Padova, 35122 Padova, Italy.

Emili Sagol Creative Arts Therapies Research Center, University of Haifa, Haifa 3498838, Israel.

出版信息

Int J Environ Res Public Health. 2020 Oct 14;17(20):7460. doi: 10.3390/ijerph17207460.

Abstract

In Western society, the topic of death has been removed from everyday life and replaced with medical language. Such censorship does not reduce individuals' fear of death, but rather limits their ability to elaborate their experiences of death, thus generating negative effects. The objective of this follow-up qualitative study was to detect how and if death education can help to improve individuals' relationship with death and enhance care environments like hospices. Semi-structured interviews were conducted with palliative care professionals and teachers who had taken part in a death education initiative three years earlier. The results confirmed the initiative's positive effect on both palliative care professionals and teachers. The participants reported that the education initiative helped them to positively modify their perspective on death, end-of-life care, and their own relationship to life, as well as their perception of community attitudes towards the hospice, which seemed to become less discriminatory. This study confirmed that school education initiatives can usefully create continuity between hospices and local communities. This project provided an educational space wherein it was possible for participants to elaborate their experiences in relation to death and to re-evaluate and appreciate hospices.

摘要

在西方社会,死亡这个话题已经从日常生活中消失,取而代之的是医学术语。这种审查并没有减少人们对死亡的恐惧,反而限制了他们详细描述自己死亡经历的能力,从而产生了负面影响。本后续定性研究的目的是检测死亡教育如何以及是否能够帮助改善人们与死亡的关系,并加强临终关怀场所等环境。对三年前参加过死亡教育活动的姑息治疗专业人员和教师进行了半结构化访谈。结果证实了该教育活动对姑息治疗专业人员和教师都产生了积极影响。参与者报告说,该教育活动帮助他们积极地改变了他们对死亡、临终关怀以及自己与生活的关系的看法,也改变了他们对社区对临终关怀机构的态度的看法,这些态度似乎变得不那么歧视了。这项研究证实,学校教育计划可以在临终关怀机构和当地社区之间建立起连续性。该项目提供了一个教育空间,让参与者能够详细描述他们与死亡有关的经历,并重新评估和欣赏临终关怀机构。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/f128/7602243/7f67975a4f5b/ijerph-17-07460-g001.jpg

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