Sim Angela, Vaz Sharmila, Cordier Reinie, Joosten Annette, Parsons Dave, Smith Cally, Falkmer Torbjörn
a School of Occupational Therapy and Social Work , Curtin University , Perth , Western Australia , Australia.
b School of Occupational Therapy , La Trobe University , Melbourne , Vic , Australia.
Dev Neurorehabil. 2018 Apr;21(3):155-165. doi: 10.1080/17518423.2017.1326185. Epub 2017 Jun 9.
The purpose of this study was to identify key factors associated with severe stress in families raising a child with autism spectrum disorder (ASD).
Questionnaires were mailed to families with one or more children with a diagnosis of ASD. Data from 543 surveys were analyzed using univariate and multivariate logistic regression.
Forty-four percent (n = 241) of the caregivers reported severe family stress related to raising a child with ASD. Severe family stress was associated with (1) reduced ability to socialize; (2) not having accessed individual therapy; (3) negative co-parent relationships; and (4) high out of pockets costs due to the child's ASD. The specific ASD diagnosis, comorbid conditions, socio-demographic variables, and social support were not associated with severe family stress.
The findings of the current study highlight the importance of a systemic approach to family stress, whereby individual, family, and ecological factors are investigated.
本研究旨在确定与抚养自闭症谱系障碍（ASD）儿童的家庭中严重压力相关的关键因素。
向有一个或多个被诊断为ASD儿童的家庭邮寄问卷。使用单变量和多变量逻辑回归分析来自543份调查的数据。
44%（n = 241）的照料者报告称，抚养患有ASD的孩子给家庭带来了严重压力。严重的家庭压力与以下因素相关：（1）社交能力下降；（2）未接受个体治疗；（3）消极的共同养育关系；（4）因孩子患有ASD导致的高额自付费用。特定的ASD诊断、共病情况、社会人口统计学变量和社会支持与严重的家庭压力无关。
本研究结果凸显了采用系统方法应对家庭压力的重要性，即对个体、家庭和生态因素进行调查。
