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COVID-19 大流行对自闭症家庭的影响:一项在线调查。

Impact of COVID-19 pandemic on families living with autism: An online survey.

机构信息

Department of Child and Adolescent Psychiatry and Psychotherapy, University Medical Center Göttingen, Germany.

Department of Child and Adolescent Psychiatry and Psychotherapy, University Medical Center Göttingen, Germany; Interdisciplinary Developmental Neuroscience, Division of Phoniatrics, Medical University of Graz, Austria; Center of Neurodevelopmental Disorders (KIND), Department of Women's and Children's Health, Karolinska Institutet Stockholm, Sweden.

出版信息

Res Dev Disabil. 2022 Oct;129:104307. doi: 10.1016/j.ridd.2022.104307. Epub 2022 Jul 11.

Abstract

BACKGROUND

The current SARS-CoV-2 global pandemic presents a great challenge for governments, health care professionals and the general population. Individuals with autism spectrum disorder (ASD) might be especially vulnerable to restrictions imposed by the crisis.

AIM

The objective of the study was to examine the impact of the SARSCoV- 2 pandemic on children with ASD and their families.

METHODS AND PROCEDURES

We conducted an online survey two months after the beginning of lock-down (18th of May to 5th of July 2020) in Germany and Austria. We investigated behavioral and emotional changes of children related to the lock-down alongside parental stress and intrafamilial burden OUTCOME AND RESULTS: Of the 216 participating families with an autistic child (mean age: 12.23 years), nearly 50% reported aggravation of autistic symptoms and heightened parental stress. Families reported discontinuation of therapy, more intrafamilial conflicts and increase of psychopharmacological medication of the child.

CONCLUSIONS AND IMPLICATIONS

Our report on short-term detrimental effects of the pandemic calls for thorough investigation of long-term sequalae for children and families.

摘要

背景

当前的 SARS-CoV-2 全球大流行给各国政府、医疗保健专业人员和普通民众带来了巨大挑战。自闭症谱系障碍(ASD)患者可能特别容易受到危机带来的限制的影响。

目的

本研究旨在探讨 SARS-CoV-2 大流行对 ASD 儿童及其家庭的影响。

方法和程序

我们在德国和奥地利封锁两个月后(2020 年 5 月 18 日至 7 月 5 日)进行了在线调查。我们调查了与封锁相关的儿童的行为和情绪变化,以及父母的压力和家庭负担。

结果

在参与调查的 216 个有自闭症儿童的家庭中(平均年龄:12.23 岁),近 50%的家庭报告自闭症症状加重和父母压力增加。家庭报告说,他们停止了治疗,家庭内部冲突更多,孩子服用的精神药物增加。

结论和意义

我们的报告显示了大流行的短期不利影响,呼吁对儿童和家庭的长期后果进行彻底调查。

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