Onofri Alessandro, Broomfield Alexander, Tan Hui-Leng
Pediatric Pulmonology & Respiratory Intermediate Care Unit, Sleep and Long-Term Ventilation Unit, Academic Department of Pediatrics, Bambino Gesü Children's Hospital IRCCS, Rome, Italy.
Willink Biochemical Genetics Unit, Manchester Center for Genomic Medicine, St. Mary's Hospital, Central Manchester Foundation Trust, Manchester, United Kingdom.
Front Pediatr. 2020 Sep 30;8:548839. doi: 10.3389/fped.2020.548839. eCollection 2020.
The number of children on long-term ventilation (LTV) has exponentially increased over the past few decades. Improvements in management of ventilation coupled with improvements in standards of medical care are increasingly allowing young people on LTV to survive into adulthood. The process of transition from the pediatric to the adult healthcare system is challenging and requires special attention. This review aims to provide an overview on transition to adult care for children on LTV. Firstly, examining effective models of transition in other childhood onset chronic conditions as a template, whilst highlighting the unique aspects of transition in LTV patients and secondly, summarizing the main relevant findings in the literature on the topic and emphasizing the importance of a multidisciplinary approach to this process.
在过去几十年中,长期通气(LTV)儿童的数量呈指数级增长。通气管理的改善以及医疗护理标准的提高,越来越多地使接受长期通气的年轻人活到成年。从儿科医疗系统向成人医疗系统的过渡过程具有挑战性,需要特别关注。本综述旨在概述接受长期通气儿童向成人护理的过渡。首先,以其他儿童期发病的慢性病中有效的过渡模式为模板进行研究,同时突出长期通气患者过渡的独特方面;其次,总结该主题文献中的主要相关发现,并强调多学科方法对这一过程的重要性。