Portuguese Institute for Oncology of Porto (IPO-Porto), Porto, Portugal; Health School Santa Maria (ESSSM), Porto, Portugal; CINTESIS - Center for Health Technology and Services Research (NursID: Innovation and Development in Nursing), Porto, Portugal.
CINTESIS - Center for Health Technology and Services Research (NursID: Innovation and Development in Nursing), Porto, Portugal; Nursing School of Porto (ESEP), Porto, Portugal.
Eur J Oncol Nurs. 2020 Dec;49:101837. doi: 10.1016/j.ejon.2020.101837. Epub 2020 Sep 18.
This study aimed to synthesize evidence of cancer patients' experiences of self-management of chemotherapy treatment-related symptoms.
A systematic review of the literature was conducted to identify all qualitative or mixed studies published between January 2007 and December 2018, addressing the experiences of patients under 18 years submitted to chemotherapy treatments. A search in databases MEDLINE®, CINAHL®, and Psychology and Behavioural Sciences Collection was performed using specific key terms and Boolean operators. A thematic analysis was designed to synthesize the main findings of the included studies.
From a total of 1.775 identified articles, 21 studies were included. Three main themes emerged and were grouped into different categories: Facilitators (e.g., "personality characteristics", "behavioural strategies", "emotional management") related to several aspects viewed globally as favourable to the self-management; Inhibitors (e.g. "symptoms-physical effects", "symptoms-emotional effect", "symptoms-change in self-care") related to several aspects that can globally make the experience of the self-management more difficult or painful; and Supports ("professionals care", "family or others" and "information/knowledge") including variables or factors which were identified by patients as supports to meet their needs perceived during the process of self-management of chemotherapy treatment-related symptoms.
Patients' experiences of the disease and symptoms self-management are diversified and require tailored nursing care, personal motivation and constructive attitudes towards chemotherapy-related symptoms. To identify facilitators and inhibitors to the self-management process will provide substantial contributions to patient-centered nursing interventions, promoting a healthier transition process.
本研究旨在综合癌症患者对化疗治疗相关症状自我管理的体验证据。
系统综述文献，以确定 2007 年 1 月至 2018 年 12 月期间发表的所有定性或混合研究，涉及接受化疗治疗的 18 岁以下患者的经验。使用特定的关键词和布尔运算符在 MEDLINE ® 、CINAHL ® 和心理学和行为科学收藏数据库中进行了搜索。设计了主题分析来综合纳入研究的主要发现。
从总共确定的 1775 篇文章中，纳入了 21 项研究。出现了三个主要主题，并分为不同的类别：促进因素（例如，“人格特征”、“行为策略”、“情绪管理”）与几个方面相关，总体上有利于自我管理；抑制剂（例如，“症状-身体影响”、“症状-情绪影响”、“症状-自我护理改变”）与几个方面相关，这些方面总体上可能使自我管理的体验更加困难或痛苦；和支持（“专业护理”、“家庭或其他”和“信息/知识”）包括患者认为是支持的变量或因素，以满足他们在化疗治疗相关症状自我管理过程中感知到的需求。
患者对疾病和症状自我管理的体验是多样化的，需要量身定制的护理，个人对化疗相关症状的积极性和建设性态度。确定自我管理过程的促进因素和抑制剂将为以患者为中心的护理干预提供实质性贡献，促进更健康的过渡过程。
