Institute for Social Medicine and Epidemiology, University of Luebeck, Lübeck, Germany.
Department of Obstetrics and Gynecology, University Hospital of Schleswig-Holstein, Campus Luebeck, Lübeck, Germany.
Psychooncology. 2021 Mar;30(3):361-368. doi: 10.1002/pon.5585. Epub 2020 Nov 17.
To evaluate the psychosocial situation of breast cancer (BC) patients with dependent children, with regard to who used family-centered psychosocial support (PS) services, reasons against using it, as well as existing, unmet needs, and current PS need.
Data were collected via survey and patient files during an inpatient rehabilitation program for mothers with BC, who were accompanied by a child <12 years. Descriptive statistics and tests for statistical significance were used.
Out of the total of 561 patients, 23.0% had used family-centered PS services before. Common reasons against it were enough support, no anticipated need and organizational issues. Patients stated a high number of unmet needs. The most urgent ones related to their children. About 59.3% of mothers stated a current PS need (PSN) and 33.3% a need for their children. Little social support and a worse maternal HRQOL, but not time since diagnosis, were related to a higher PSN in mothers and children (bivariate association).
Among BC patients with dependent children, clinicians need to take the whole family and their support needs into account. They should know about the existing organizational barriers, which need to be overcome with the help of tailored offers. Patients with low HRQOL, little social support and single-mothers (with regard to children's PSN) need special attention as these can be indicators of high PSN.
评估有未成年子女的乳腺癌（BC）患者的社会心理状况，包括使用以家庭为中心的心理社会支持（PS）服务的患者、不使用该服务的原因、以及存在的未满足需求和当前的 PS 需求。
通过对在乳腺癌康复计划中接受治疗的并伴有 12 岁以下子女的母亲进行调查和患者档案收集数据。采用描述性统计和统计显著性检验。
在总共 561 名患者中，有 23.0%的患者之前使用过以家庭为中心的 PS 服务。常见的反对原因是有足够的支持、没有预期的需求和组织问题。患者表示存在大量未满足的需求。最紧迫的需求与他们的孩子有关。约 59.3%的母亲表示存在当前的 PS 需求（PSN），33.3%的母亲表示需要为其孩子提供 PS。较少的社会支持和较差的母亲 HRQOL，但与诊断时间无关，与母亲和孩子的更高 PSN 相关（单变量关联）。
在有未成年子女的 BC 患者中，临床医生需要考虑整个家庭及其支持需求。他们应该了解现有的组织障碍，并通过量身定制的服务来克服这些障碍。HRQOL 较低、社会支持较少和单亲母亲（与孩子的 PSN 有关）的患者需要特别关注，因为这些可能是 PSN 较高的指标。
