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患癌母亲:一项调查角色需求和感知应对能力的交叉混合方法研究

Mothers with Cancer: An Intersectional Mixed-Methods Study Investigating Role Demands and Perceived Coping Abilities.

作者信息

Spiropoulos Athina, Deleemans Julie, Beattie Sara, Carlson Linda E

机构信息

Division of Psychosocial Oncology, Department of Oncology, Cumming School of Medicine, University of Calgary, Calgary, AB T2N 4N1, Canada.

Tom Baker Cancer Centre, Alberta Health Services, Calgary, AB T2N 4N2, Canada.

出版信息

Cancers (Basel). 2023 Mar 22;15(6):1915. doi: 10.3390/cancers15061915.

Abstract

Mothers with cancer report guilt associated with failing to successfully balance their parental roles and cancer. This study utilized a cross-sectional mixed-methods design and intersectional framework to investigate the multiple roles that mothers with cancer assume and their perceived coping ability. Participants included mothers diagnosed with any type or stage of cancer, in treatment or ≤3 years post-treatment, and experiencing cancer-related disability with a dependent child (<18 years, living at home). Participants completed a questionnaire battery, semi-structured interview, and optional focus group. Descriptive statistics, correlations, and thematic inductive analyses are reported. The participants' ( = 18) mean age was 45 years ( = 5.50), and 67% were in active treatment. Their role participation ( = 42.74, ±6.21), role satisfaction ( = 43.32, ±5.61), and self-efficacy ( = 43.34, ±5.62) were lower than the general population score of 50. Greater role participation and higher role satisfaction were positively correlated ( = 0.74, ≤ 0.001). A qualitative analysis revealed that the mothers retained most roles, and that their quality of life depended on their capacity to balance those roles through emotion-focused and problem-focused coping. We developed the intersectional Role Coping as a Mother with Cancer (RCMC) model, which has potential research and clinical utility.

摘要

患有癌症的母亲表示,她们因未能成功平衡母亲角色和与癌症相关的事务而感到内疚。本研究采用横断面混合方法设计和交叉性框架,以调查患有癌症的母亲所承担的多重角色及其感知到的应对能力。参与者包括被诊断患有任何类型或阶段癌症、正在接受治疗或治疗后≤3年,且因癌症相关残疾而需要抚养子女(<18岁,居住在家)的母亲。参与者完成了一系列问卷、半结构化访谈以及可选的焦点小组讨论。报告了描述性统计、相关性分析和主题归纳分析结果。参与者(n = 18)的平均年龄为45岁(标准差 = 5.50),67%的人正在接受积极治疗。她们的角色参与度(均值 = 42.74,标准差±6.21)、角色满意度(均值 = 43.32,标准差±5.61)和自我效能感(均值 = 43.34,标准差±5.62)均低于总体人群得分50。更高的角色参与度与更高的角色满意度呈正相关(r = 0.74,p≤0.001)。定性分析表明,这些母亲保留了大部分角色,她们的生活质量取决于通过以情感为中心和以问题为中心的应对方式来平衡这些角色的能力。我们开发了交叉性的“癌症母亲角色应对”(RCMC)模型,该模型具有潜在的研究和临床应用价值。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/042d/10047435/8c81173ad172/cancers-15-01915-g001.jpg

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