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Patient engagement in health technology assessment (HTA) and the regulatory process: what about rheumatology?

作者信息

de Wit Maarten, Guillemin Francis, Grimm Sabine, Boonen Annelies, Fautrel Bruno, Joore Manuela

机构信息

Patient Research Partner, EULAR, Zaltbommel, Netherlands

School of Public Health, Nancy, France.

出版信息

RMD Open. 2020 Nov;6(3). doi: 10.1136/rmdopen-2020-001286.

DOI:10.1136/rmdopen-2020-001286
PMID:33148783
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7856120/
Abstract
摘要

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EULAR PARE: Knowledge Transfer Programme.欧洲抗风湿病联盟患者教育：知识传播项目。
Reumatologia. 2020;58(2):123-125. doi: 10.5114/reum.2020.95367. Epub 2020 Apr 30.
2
Practical guidance for engaging patients in health research, treatment guidelines and regulatory processes: results of an expert group meeting organized by the World Health Organization (WHO) and the European Society for Clinical and Economic Aspects of Osteoporosis, Osteoarthritis and Musculoskeletal Diseases (ESCEO).参与健康研究、治疗指南和监管流程的患者参与实用指南：世界卫生组织（WHO）和欧洲临床与经济骨质疏松、骨关节炎和肌肉骨骼疾病学会（ESCEO）组织的专家组会议的结果。
Aging Clin Exp Res. 2019 Jul;31(7):905-915. doi: 10.1007/s40520-019-01193-8. Epub 2019 Apr 16.
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芬兰患者组织参与药品评估和报销流程的经验 - 一项定性研究。
Int J Technol Assess Health Care. 2024 Jul 2;40(1):e26. doi: 10.1017/S0266462324000229.
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Patient research partner involvement in rheumatology research: a systematic literature review informing the 2023 updated EULAR recommendations for the involvement of patient research partners.患者研究伙伴参与风湿病学研究：系统文献回顾为 2023 年更新的 EULAR 患者研究伙伴参与建议提供信息。
Ann Rheum Dis. 2024 Sep 30;83(10):1268-1277. doi: 10.1136/ard-2024-225567.
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Embedding the Patient-Citizen Perspective into an Operational Framework for the Development and the Introduction of New Technologies in Rehabilitation Care: The Smart&Touch-ID Model.将患者-公民视角融入康复护理新技术开发与引入的运营框架：智能&触摸识别模型。
Healthcare (Basel). 2023 May 30;11(11):1604. doi: 10.3390/healthcare11111604.
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Engaging Patients in the Canadian Real-World Evidence for Value in Cancer Drugs (CanREValue) Initiative: Processes and Lessons Learned.参与加拿大癌症药物价值真实世界证据倡议（CanREValue）：过程和经验教训。
Curr Oncol. 2022 Aug 7;29(8):5616-5626. doi: 10.3390/curroncol29080443.
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RMD Open. 2020 Nov;6(3). doi: 10.1136/rmdopen-2020-001288.
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Health economic course in rheumatology: a EULAR SCHOOL initiative.风湿病学中的卫生经济学课程：欧洲抗风湿病联盟学校倡议。
RMD Open. 2020 Nov;6(3). doi: 10.1136/rmdopen-2020-001238.
Unique role of rheumatology in establishing collaborative relationships in research. Past, present and future of patient engagement.风湿病学在建立研究合作关系方面的独特作用。患者参与的过去、现在和未来。
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