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针对阿尔茨海默病患者照料者的在线积极心理干预经验:一项解释现象学分析。

Experience with an online positive psychology intervention for caregivers of people with Alzheimer's disease: an interpretative phenomenological analysis.

作者信息

Dobignies Marie, Larochette Clotilde, Andreotti Eva, Millequant-Gourari Faouzia, Gonzalez de Linares Johanna, Lefebvre Louise, Cassagnaud Pascaline, Pasquier Florence, Antoine Pascal

机构信息

CNRS, UMR 9193 - SCALab - Sciences Cognitives et Sciences Affectives, University Lille, Lille, France.

CHU Lille, Department of Neurology, Memory Research and Resources Clinic, Lille, France.

出版信息

Int J Qual Stud Health Well-being. 2025 Dec;20(1):2494349. doi: 10.1080/17482631.2025.2494349. Epub 2025 Apr 28.

DOI:10.1080/17482631.2025.2494349
PMID:40292535
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12039410/
Abstract

PURPOSE

Considering the distress experienced by caregivers, numerous support systems have been devised. Recently, interventions focused on positive psychology have resulted in beneficial effects for caregivers. This study aimed to investigate the experience of caregivers of people with Alzheimer's disease with an online positive psychology intervention.

METHODS

To understand caregivers' experiences of an 8-week positive psychology intervention, 10 participants participated in a semistructured individual interview. Interpretative phenomenological analysis was carried out on the interviews.

RESULTS

Three themes were identified. [1] Engaging half-heartedly: Positive psychology was initially perceived as an unknown and caregivers expressed their scepticism before gradually integrating the intervention into their daily routine. [2] Letting yourself be destabilized: Caregivers went through an uncomfortable phase, becoming aware of their overprotective or controlling behaviours and the consequences of their psychological distress. [3] A springboard to change: Several realizations resulted in changes, such as reactivating internal resources and cultivating a more balanced outlook with less focus on the illness of the care receiver and the caregiving situation.

CONCLUSIONS

The results show that caregivers were completely autonomous during the online intervention and engaged in the processes promoted by positive psychology, which supports further development of online resources for caregivers.

摘要

目的

考虑到照顾者所经历的痛苦,已设计了众多支持系统。最近,聚焦于积极心理学的干预措施已对照顾者产生了有益影响。本研究旨在通过一项在线积极心理学干预来调查阿尔茨海默病患者照顾者的体验。

方法

为了解照顾者对为期8周的积极心理学干预的体验,10名参与者参加了半结构化的个人访谈。对访谈进行了解释现象学分析。

结果

确定了三个主题。[1] 敷衍了事地参与:积极心理学最初被视为未知事物,照顾者在将干预措施逐渐融入日常生活之前表达了他们的怀疑态度。[2] 让自己陷入不安:照顾者经历了一个不舒服的阶段,意识到自己过度保护或控制的行为以及心理困扰的后果。[3] 改变的跳板:一些认知带来了改变,比如重新激活内在资源,培养更平衡的观点,减少对受照顾者疾病和照顾情况的关注。

结论

结果表明,照顾者在在线干预期间完全自主,并参与了积极心理学所推动的过程,这支持了为照顾者进一步开发在线资源。

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