Pediatr Ann. 2020 Nov 1;49(11):e473-e477. doi: 10.3928/19382359-20201013-01.
Families of children with medical complexity (CMC) face many types of health-related decisions. These decisions vary in magnitude of consequences, degree of risk, time scale, degree of tradeoffs, degree of uncertainty, degree of linkage with other decisions, and reversibility. There are many influences on decision-making, including evidence, hopes, and values. Primary care pediatricians are in a unique position to assist families of CMC with decision-making. Pediatric clinicians have an opportunity to establish a trusting relationship with a family over time and to understand the family's values, beliefs, and preferences during periods of relative health and stability. This allows primary care pediatricians to support families in decision-making by helping to clarify their values and goals and apply those values to the decision at hand. [Pediatr Ann. 2020;49(11):e473-e477.].
患有复杂性疾病的儿童（CMC）的家庭面临着许多类型的与健康相关的决策。这些决策在后果的严重程度、风险程度、时间尺度、权衡程度、不确定性程度、与其他决策的关联性以及可逆性方面存在差异。决策受到许多因素的影响，包括证据、希望和价值观。初级保健儿科医生在帮助 CMC 家庭做出决策方面处于独特的地位。儿科临床医生有机会随着时间的推移与一个家庭建立信任关系，并在相对健康和稳定的时期了解家庭的价值观、信仰和偏好。这使初级保健儿科医生能够通过帮助澄清他们的价值观和目标，并将这些价值观应用于当前的决策，来支持家庭做出决策。[儿科学报。2020；49（11）：e473-e477。]。
