Ågren Susanna, Sjöberg Trygve, Ekmehag Björn, Wiborg Maj-Britt, Ivarsson Bodil
Department of Cardiothoracic Surgery, Lund University, Lund, Sweden.
Division of Nursing Science, Department of Medical and Health Sciences, Linköping University, Linköping, Sweden.
Clin Transplant. 2017 Mar;31(3). doi: 10.1111/ctr.12905. Epub 2017 Feb 6.
Psychosocial factors are important for patients undergoing heart (HTx) or lung (LTx) transplantation and for their next of kin (NoK).
To describe health-related quality of life (HRQoL; patients only), anxiety, depression, stress, coping ability, and burden (NoK only) for patients and their NoK before and up to 2 years after HTx or LTx.
Adult patients (28 hearts and 26 lungs) and their appointed NoK were surveyed with questionnaires about specific psychosocial topics when they were accepted for the transplantation waiting list and 6 months, 1 year, and 2 years after transplantation.
Patients' coping ability and self-perceived health were low at baseline and improved over time after transplantation. However, lung patients took longer time to recover in terms of HRQoL, depression, and stress than heart patients. Similarly, NoK of lung patients experienced a higher burden and more stress 1 year after transplantation than NoK of heart patients.
Healthcare professionals should be aware of the psychosocial challenges patients and their NoK face in daily living and provide support both before and after heart or lung transplantation.
社会心理因素对接受心脏移植（HTx）或肺移植（LTx）的患者及其近亲（NoK）而言至关重要。
描述HTx或LTx患者及其NoK在移植前以及移植后长达2年的健康相关生活质量（HRQoL；仅针对患者）、焦虑、抑郁、压力、应对能力和负担（仅针对NoK）。
对成年患者（28例心脏移植和26例肺移植）及其指定的NoK进行问卷调查，调查内容涉及特定的社会心理主题，调查时间为他们被列入移植等待名单时以及移植后6个月、1年和2年。
患者的应对能力和自我感知健康状况在基线时较低，移植后随时间推移有所改善。然而，在HRQoL、抑郁和压力方面，肺移植患者比心脏移植患者恢复所需时间更长。同样，肺移植患者的NoK在移植后1年比心脏移植患者的NoK经历更高的负担和更多的压力。
医疗保健专业人员应意识到患者及其NoK在日常生活中面临的社会心理挑战，并在心脏或肺移植前后提供支持。
