Budziszewska Magdalena Daria, Babiuch-Hall Małgorzata, Wielebska Katarzyna
Department of Psychology, University of Warsaw, Warsaw, Poland.
Front Psychol. 2020 Oct 26;11:570928. doi: 10.3389/fpsyg.2020.570928. eCollection 2020.
Love is a universal experience that most people desire. A serious, long-term, and stigmatized illness makes entering and maintaining close relationships difficult, however. Ten persons, who have been diagnosed with schizophrenia, and lived with their illness for between years and decades of their lifetimes, shared their stories. They reported how the illness has influenced their emotional experiences regarding love and their intimate relationship experiences. We present here a qualitative interpretative phenomenological analysis (IPA) of their narratives. This analysis has been done with an explicit intention to give voice to the patient's perspective. The results highlight how illness adjustment and hospitalizations have an alienating effect on relationships through stigmatization and self-stigmatization; how illness creates psychological obstacles to love, such as diminished trust toward oneself and others; and how long-term patients experience practical difficulties in creating and sustaining relationships, such as poverty. Moreover, we show how patients experience changes in sexuality and the risks involved in it and discuss possible coping strategies from their perspectives.
爱是一种大多数人都渴望的普遍体验。然而，一种严重、长期且备受污名化的疾病会使建立和维持亲密关系变得困难。十位被诊断患有精神分裂症且患病长达数年乃至数十年的患者分享了他们的故事。他们讲述了疾病如何影响他们在爱情方面的情感体验以及亲密关系经历。在此，我们对他们的叙述进行了质性解释现象学分析（IPA）。进行这种分析的明确意图是表达患者的观点。结果凸显了疾病调适和住院治疗如何通过污名化和自我污名化对人际关系产生疏离作用；疾病如何给爱情制造心理障碍，比如对自己和他人的信任降低；长期患病的患者在建立和维持关系方面如何面临实际困难，比如贫困。此外，我们展示了患者在性方面的体验变化及其所涉及的风险，并从他们的角度讨论了可能的应对策略。
