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隐形自闭症基础设施:自闭症社区的民族志反思。

Invisible Autistic Infrastructure: Ethnographic Reflections on an Autistic Community.

机构信息

Department of Anthropology, New York University, New York, New York, USA.

出版信息

Med Anthropol. 2021 Feb-Mar;40(2):129-140. doi: 10.1080/01459740.2020.1849185. Epub 2020 Nov 20.

Abstract

In this article, I provide an ethnographic account of an autistic-run community for adults in a North American city. By spending time with each other in loosely structured social interactions, members of this group participate in the ongoing construction of a complex and necessary social infrastructure in the face of often inadequate social and material support from their personal networks, and the larger society in which they live. The work this community does remains largely invisible because it runs counter to dominant biomedical understandings of autism and exists outside of the autism treatment industry.

摘要

在本文中,我提供了一个北美的城市中一个由自闭症成年人运营的社区的民族志描述。通过在松散结构的社交互动中彼此相处,这个群体的成员在面对来自个人网络和他们生活的更大社会的常常不足的社会和物质支持时,参与到一个复杂而必要的社会基础设施的持续构建中。这个社区所做的工作在很大程度上是看不见的,因为它与主流的自闭症生物医学理解背道而驰,并且存在于自闭症治疗行业之外。

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