Department of Dermatology, Manipal Teaching Hospital, Fulbari, Pokhara-11, Kaski 33700, Nepal.
Department of Dermatology, Manipal College of Medical Sciences, Manipal Teaching Hospital, Fulbari, Pokhara-11, Kaski 33700, Nepal.
Dermatol Clin. 2021 Jan;39(1):117-127. doi: 10.1016/j.det.2020.08.011. Epub 2020 Oct 31.
The authors collected demographics and assessed the impact of vitiligo using Vitiligo Quality of Life (VitiQoL) and Vitiligo Impact Scale (VIS), followed by a focused survey and semistructured interviews with 22 participants in midwestern Nepal. VitiQoL and VIS scales did not indicate a large impact on quality of life; however, through interviews/focused surveys, participants expressed unhappiness/worry, problems in finding partners, securing employment, and social discrimination due to their skin lesions. These stressors are highlighted along with lack of proper physician counseling and vitiligo-related myths, which create psychosocial distress that may not be given priority in underdeveloped countries like Nepal.
作者收集了人口统计学数据,并使用白癜风生活质量量表(VitiQoL)和白癜风影响量表(VIS)评估了白癜风的影响,随后在尼泊尔中西部对 22 名参与者进行了重点调查和半结构化访谈。VitiQoL 和 VIS 量表并未表明对生活质量有重大影响;然而,通过访谈/重点调查,参与者表达了他们因皮肤损伤而感到不快乐/担忧、在寻找伴侣、就业方面存在问题以及遭受社会歧视。这些压力因素以及缺乏适当的医生咨询和与白癜风相关的误解被突出强调,这些因素造成的心理社会困扰可能在尼泊尔等欠发达国家没有得到优先重视。