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使用一种白癜风患者特异性生活质量量表对白癜风患者生活质量的前瞻性横断面研究。

Prospective Cross-Sectional Study of Quality of Life of Vitiligo Patients Using a Vitiligo Specific Quality of Life Instrument.

机构信息

Department of Medicine, Lagos State University Teaching Hospital, 1-5 Oba Akinjobi Way, Ikeja, Lagos, Nigeria.

出版信息

West Afr J Med. 2020 Dec;37(7):745-749.

PMID:33296482
Abstract

BACKGROUND

Studies on the QOL of Vitiligo patients are few in Nigeria with consequent limited reports of the relationship between QOL and vitiligo. Also, the VitiQoL has not been used in Nigerian studies. The objective of this study, therefore, was to determine the QOL of Vitiligo patients using the VitiQoL to determine the socio-demographic and clinical factors which impair QOL and the QOL items affected by vitiligo.

METHODS

This was a prospective cross-sectional study of 29 newly diagnosed vitiligo patients over a one year period at the skin clinic of the Lagos State University Teaching Hospital following ethical approval. Patients were clinically evaluated, clinical and socio-demographic characteristics were documented using a questionnaire designed for the study. Quality of life was assessed using two instruments; the VitiQoL and the DQLI. The Statistical Package for Social Sciences (SPSS) IBM version 22 was used for data analysis and p<0.05 was considered significant for all statistical tests.

RESULTS

The mean vitiQoL was 37.4±24.4, the lowest and highest vitiQoL were 0 and 84. QOL was impaired in 96.6% and the severity of impairment was mild, moderate and severe in 27.6%, 24.1% and 44.8% respectively. The items of impairment on the vitiQoL were embarrassment (55.5%), bother (55.2%), frustration (55.2%), people's perception (40.9%), and worry about spread (75.9%).

CONCLUSION

The VitiQOL is a reliable instrument for assessing QOL in vitiligo and the main item impacted is stigmatization. Social and clinical factors are independent of QOL impairment.

摘要

背景

在尼日利亚,关于白癜风患者生活质量的研究很少,因此关于生活质量与白癜风之间的关系的报告也很有限。此外,VitiQoL 尚未在尼日利亚的研究中使用。因此,本研究的目的是使用 VitiQoL 来确定白癜风患者的生活质量,以确定影响生活质量的社会人口统计学和临床因素以及受白癜风影响的生活质量项目。

方法

这是一项为期一年的前瞻性横断面研究,在拉各斯州立大学教学医院皮肤科对 29 名新诊断的白癜风患者进行了研究,研究获得了伦理批准。对患者进行临床评估,并使用为研究设计的问卷记录临床和社会人口统计学特征。使用两种工具评估生活质量;VitiQoL 和 DQLI。使用社会科学统计软件包(SPSS)IBM 版本 22 进行数据分析,所有统计检验均认为 p<0.05 具有统计学意义。

结果

平均 vitiQoL 为 37.4±24.4,最低和最高 vitiQoL 分别为 0 和 84。96.6%的患者生活质量受损,且损害程度为轻度、中度和重度分别为 27.6%、24.1%和 44.8%。vitiQoL 受损的项目包括尴尬(55.5%)、烦恼(55.2%)、沮丧(55.2%)、人们的看法(40.9%)和担心扩散(75.9%)。

结论

VitiQoL 是评估白癜风患者生活质量的可靠工具,受影响的主要项目是污名化。社会和临床因素与生活质量受损无关。

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