Public Health and Health Services Research Group, Stroke Theme, Florey Institute of Neuroscience and Mental Health-Austin Campus, Heidelberg, Victoria, Australia.
AVERT Early Rehabilitation Research, Stroke Theme, Florey Institute of Neuroscience and Mental Health, Heidelberg, Victoria, Australia.
BMJ Open. 2020 Nov 23;10(11):e038190. doi: 10.1136/bmjopen-2020-038190.
Patient-reported outcomes (PROs) provide self-reported patient assessments of their quality of life, daily functioning, and symptom severity after experiencing an illness and having contact with the health system. Feeding back summarised PROs data, aggregated at the health-service level, to healthcare professionals may inform clinical practice and quality improvement efforts. However, little is known about the best methods for providing these summarised data in a way that is meaningful for this audience. Therefore, the aim of this scoping review was to summarise the emerging approaches to PROs data for 'service-level' feedback to healthcare professionals.
Healthcare professionals receiving PROs data feedback at the health-service level.
Databases selected for the search were Embase, Ovid Medline, Scopus, Web of Science and targeted web searching. The main search terms included: 'patient-reported outcome measures', 'patient-reported outcomes', 'patient-centred care', 'value-based care', 'quality improvement' and 'feedback'. Studies included were those that were published in English between January 2009 and June 2019.
Data were extracted on the feedback methods of PROs to patients or healthcare providers. A standardised template was used to extract information from included documents and academic publications. Risk of bias was assessed using Joanna Briggs Institute Levels of Evidence for Effectiveness.
Overall, 3480 articles were identified after de-duplication. Of these, 19 academic publications and 22 documents from the grey literature were included in the final review. Guiding principles for data display methods and graphical formats were identified. Seven major factors that may influence PRO data interpretation and use by healthcare professionals were also identified.
While a single best format or approach to feedback PROs data to healthcare professionals was not identified, numerous guiding principles emerged to inform the field.
患者报告的结局（PROs）提供了患者对自身生活质量、日常功能和患病及与卫生系统接触后症状严重程度的自我评估。向医疗保健专业人员反馈汇总的 PRO 数据，按卫生服务水平汇总，可能会为临床实践和质量改进工作提供信息。然而，对于以对该受众有意义的方式提供这些汇总数据的最佳方法知之甚少。因此，本范围综述的目的是总结向医疗保健专业人员提供“服务水平”反馈的 PRO 数据的新兴方法。
在卫生服务层面上收到 PRO 数据反馈的医疗保健专业人员。
为搜索选择的数据库包括 Embase、Ovid Medline、Scopus、Web of Science 和有针对性的网络搜索。主要搜索词包括：“患者报告的结果测量”、“患者报告的结果”、“以患者为中心的护理”、“基于价值的护理”、“质量改进”和“反馈”。纳入的研究是在 2009 年 1 月至 2019 年 6 月期间以英文发表的研究。
从纳入的文献和学术出版物中提取了关于向患者或医疗保健提供者反馈 PRO 的方法的信息。使用标准模板从纳入的文件和学术出版物中提取信息。使用 Joanna Briggs 研究所的循证证据水平评估偏倚风险。
经过去重后，共确定了 3480 篇文章。其中，19 篇学术出版物和 22 篇灰色文献被纳入最终综述。确定了数据显示方法和图形格式的指导原则。还确定了可能影响医疗保健专业人员对 PRO 数据的解释和使用的七个主要因素。
虽然没有确定向医疗保健专业人员反馈 PRO 数据的单一最佳格式或方法，但出现了许多指导原则来为该领域提供信息。
