Public Health: Stroke Division, Florey Institute of Neuroscience and Mental Health-Austin Campus, Heidelberg, Victoria, Australia.
Victorian Agency for Health Information, Victoria Department of Health and Human Services, Melbourne, Victoria, Australia.
BMJ Open. 2022 Jul 1;12(7):e055999. doi: 10.1136/bmjopen-2021-055999.
OBJECTIVES: Patient-reported outcomes (PROs) are increasingly used to measure the patient's perspective of their outcomes following healthcare interventions. The aim of this study was to determine the preferred formats for reporting service-level PROs data to clinicians, researchers and managers to support greater utility of these data to improve healthcare and patient outcomes. SETTING: Healthcare professionals receiving PRO data feedback at the health service level. PARTICIPANTS: An interdisciplinary Project Working Group comprised of clinicians participated in three workshops to codesign reporting templates of summarised PRO data (modified Rankin Scale, EuroQol Five Dimension Descriptive System, EuroQol Visual Analogue Scale and Hospital Anxiety and Depression Scale) using a modified Delphi process. An electronic survey was then distributed to short list the preferred templates among a broad sample of clinical end users. A final workshop was undertaken with the Project Working Group to review results and reach consensus on the final templates. PRIMARY AND SECONDARY OUTCOME MEASURES: The recommendation of preferred PRO summary data feedback templates and guiding principles for reporting aggregate PRO data to clinicians was the primary outcome. A secondary outcome was the identification of perceived barriers and enablers to the use of PRO data in hospitals. For each outcome measure, quantitative and qualitative data were summarised. RESULTS: 31 Working Group members (19 stroke, 2 psychology, 1 pharmacy, 9 researchers) participated in the workshops, where 25/55 templates were shortlisted for wider assessment. The survey was completed by 114 end users. Strongest preferences were identified for bar charts (37/82 votes, 45%) and stacked bar charts (37/91 votes, 41%). At the final workshop, recommendations to enhance communication of PROs data for comparing health service performance were made including tailoring feedback to professional roles and use of case-mix adjustment to ensure fair comparisons. CONCLUSIONS: Our research provides guidance on PROs reporting for optimising data interpretation and comparing hospital performance.
目的：患者报告结局（PROs）越来越多地用于衡量患者在接受医疗干预后的自身结局。本研究旨在确定向临床医生、研究人员和管理人员报告服务水平 PRO 数据的首选格式，以支持更有效地利用这些数据改善医疗保健和患者结局。
设置：在医疗服务层面接收 PRO 数据反馈的医疗保健专业人员。
参与者：一个由临床医生组成的跨学科项目工作组参与了三次研讨会，使用改良 Delphi 流程对简化的 PRO 数据（改良 Rankin 量表、欧洲五维健康量表描述系统、欧洲五维健康量表视觉模拟量表和医院焦虑抑郁量表）的报告模板进行了共同设计。然后，向一个广泛的临床终端用户样本分发了一份电子调查，以筛选出首选模板。项目工作组进行了最后一次研讨会，以审查结果并就最终模板达成共识。
主要和次要结果：主要结果是推荐首选的 PRO 总结数据反馈模板和向临床医生报告总体 PRO 数据的指导原则。次要结果是确定在医院使用 PRO 数据的障碍和促进因素。对于每个结果衡量标准，都对定量和定性数据进行了总结。
结果：31 名工作组成员（19 名脑卒中患者、2 名心理学家、1 名药剂师、9 名研究人员）参加了研讨会，其中 25/55 个模板被列为更广泛评估的对象。114 名终端用户完成了调查。条形图（37/82 票，45%）和堆叠条形图（37/91 票，41%）得到了最强的偏好。在最后一次研讨会上，提出了一些建议来增强 PRO 数据的沟通，以比较医疗服务绩效，包括根据专业角色定制反馈和使用病例组合调整来确保公平比较。
结论：我们的研究为 PRO 报告提供了指导，以优化数据解释和比较医院绩效。
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JBI Database System Rev Implement Rep. 2015-1
BMC Med Res Methodol. 2019-12-5
J Health Serv Res Policy. 2017-12-20
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