Department of General Psychology, University of Padua, 35131 Padua, Italy.
Department of Philosophy, Sociology, Pedagogy and Applied Psychology, University of Padua, 35131 Padua, Italy.
Int J Environ Res Public Health. 2020 Nov 23;17(22):8683. doi: 10.3390/ijerph17228683.
Fibromyalgia is a chronic disabling syndrome, and the legitimacy of its diagnosis is still debated. Internet and online communities may become a relevant resource for affected people. This present study aims to understand the role of online communities relating to fibromyalgia syndrome (FMS) patients' illness experiences and their attitudes towards medication. A qualitative content analysis based on the grounded theory approach was conducted on 19 conversations from an online forum, and 14 online interviews. Illness experience, lack of reference points, online communities, personal role and attitude towards medication were the five categories identified, with the search for recognition as the core category. The study highlighted that online communities represent a resource that allows users to express and share their needs, especially in terms of legitimacy and recognition.
纤维肌痛是一种慢性致残综合征，其诊断的合法性仍存在争议。互联网和在线社区可能成为受影响人群的一个重要资源。本研究旨在了解与纤维肌痛综合征（FMS）患者疾病体验及其对药物治疗态度相关的在线社区的作用。采用扎根理论方法的定性内容分析对来自在线论坛的 19 次对话和 14 次在线访谈进行了分析。确定了五个类别，即疾病体验、缺乏参照点、在线社区、个人角色和对药物的态度，以寻求认可为核心类别。研究强调，在线社区是一个资源，允许用户表达和分享他们的需求，特别是在合法性和认可方面。
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