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家长如何应对孩子的慢性肾脏病?一项定性研究,旨在确定与家长适应相关的因素。

How do parents deal with their children's chronic kidney disease? A qualitative study for identifying factors related to parent's adaptation.

机构信息

Department of Medical - Surgical Nursing, School of Nursing and Midwifery, Urmia University of Medical Sciences, Urmia, IR, Iran.

Patient Safety Research Center, Urmia University of Medical Science, Urmia, IR, Iran.

出版信息

BMC Nephrol. 2020 Nov 25;21(1):509. doi: 10.1186/s12882-020-02170-4.

DOI:10.1186/s12882-020-02170-4
PMID:33238900
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7690036/
Abstract

BACKGROUND

Parents' adaptation affects the health outcomes of children with chronic kidney diseases (CKD). Identifying factors that affect parents' adaptation is necessary to understand their adaptation status. This study aims to explore factors related to the adaptation of parents who have children with CKD.

METHODS

This was a qualitative study with a content analysis approach. Seventeen parents of children with CKD were selected by using purposive sampling. The leading researcher performed semi-structured, in-depth, face-to-face interviews to collect data. Conventional content analysis was used to analyze data.

RESULTS

Two main categories extracted from the data were "adaptation facilitators" and "adaptation barriers." Adaptation facilitators were supported by three sub-categories: "social support", "family capability" and "spiritual beliefs". Four sub-categories of "adaptation barriers" were revealed as: "family-related barriers," "mental stress by others," "the chronic nature of the disease," and "unfavorable treatment conditions."

CONCLUSIONS

Identifying the factors influencing parental adaptation helps the medical staff to make the necessary interventions to support the parents. According to this study, increasing parent access to the required information, supporting them financially and emotionally, and helping them identify support resources can facilitate their adaptation to their child's chronic illness. Also, identifying and eliminating adaptation barriers can help parents deal better with their child's chronic disease.

摘要

背景

父母的适应情况会影响患有慢性肾脏病(CKD)儿童的健康结果。了解影响父母适应的因素对于理解他们的适应状况是必要的。本研究旨在探讨与患有 CKD 儿童的父母适应相关的因素。

方法

这是一项采用内容分析法的定性研究。通过目的抽样选择了 17 名患有 CKD 儿童的父母。主要研究者通过半结构化、深入的面对面访谈来收集数据。采用常规内容分析法对数据进行分析。

结果

从数据中提取出两个主要类别:“适应促进因素”和“适应障碍”。适应促进因素由三个子类别支持:“社会支持”、“家庭能力”和“精神信仰”。揭示了四个适应障碍的子类别:“家庭相关障碍”、“他人的精神压力”、“疾病的慢性性质”和“不利的治疗条件”。

结论

确定影响父母适应的因素有助于医务人员进行必要的干预,以支持父母。根据这项研究,增加父母获取所需信息的机会,在经济和情感上支持他们,并帮助他们识别支持资源,可以促进他们适应孩子的慢性疾病。此外,识别和消除适应障碍可以帮助父母更好地应对孩子的慢性疾病。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/cf05/7690036/fe74c749f2a7/12882_2020_2170_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/cf05/7690036/fe74c749f2a7/12882_2020_2170_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/cf05/7690036/fe74c749f2a7/12882_2020_2170_Fig1_HTML.jpg

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本文引用的文献

1
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J Med Internet Res. 2018 Aug 1;20(8):e245. doi: 10.2196/jmir.9547.
2
Caregiving burden of children with chronic diseases.慢性病患儿的照料负担。
Electron Physician. 2017 Sep 25;9(9):5380-5387. doi: 10.19082/5380. eCollection 2017 Sep.
3
Improving health, well-being and parenting skills in parents of children with medical complexity: a scoping review protocol.
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Heliyon. 2024 Jan 28;10(3):e25415. doi: 10.1016/j.heliyon.2024.e25415. eCollection 2024 Feb 15.
4
Beyond Diagnosis: Preliminary Study of Impact on Children and Parents in Neurodevelopmental Disorders and Juvenile Idiopathic Arthritis-Associated Uveitis.超越诊断:对神经发育障碍和青少年特发性关节炎相关性葡萄膜炎患儿及家长影响的初步研究
Diagnostics (Basel). 2024 Jan 26;14(3):275. doi: 10.3390/diagnostics14030275.
5
Understanding adaptability in the family environment in facing COVID-19: A review.了解家庭环境在应对新冠肺炎疫情时的适应性:一项综述
Heliyon. 2023 Oct 27;9(11):e20618. doi: 10.1016/j.heliyon.2023.e20618. eCollection 2023 Nov.
6
Psychometric Properties of the Portuguese Version of the Iceland-Family Perceived Support Questionnaire in Parents of Children and Adolescents with Chronic Condition.《冰岛家庭感知支持问卷》葡萄牙文版在儿童和青少年慢性病父母中的心理测量特性。
Int J Environ Res Public Health. 2022 Dec 23;20(1):247. doi: 10.3390/ijerph20010247.
7
The Other Sibling: A Systematic Review of the Mental Health Effects on a Healthy Sibling of a Child With a Chronic Disease.另一个兄弟姐妹:对患有慢性病儿童的健康兄弟姐妹心理健康影响的系统评价
Cureus. 2022 Sep 11;14(9):e29042. doi: 10.7759/cureus.29042. eCollection 2022 Sep.
8
Perceived family impact and coping mechanisms of caregivers of children with nephrotic syndrome.肾病综合征患儿照顾者的家庭影响感知和应对机制。
Pediatr Nephrol. 2023 Apr;38(4):1177-1185. doi: 10.1007/s00467-022-05619-w. Epub 2022 Aug 1.
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4
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5
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J Genet Couns. 2017 Aug;26(4):829-840. doi: 10.1007/s10897-016-0060-9. Epub 2016 Dec 30.
6
Chronic kidney disease in children.儿童慢性肾脏病
Clin Kidney J. 2016 Aug;9(4):583-91. doi: 10.1093/ckj/sfw047. Epub 2016 Jun 5.
7
Psychological interventions for parents of children and adolescents with chronic illness.针对患有慢性病的儿童和青少年家长的心理干预措施。
Cochrane Database Syst Rev. 2015 Apr 15;4(4):CD009660. doi: 10.1002/14651858.CD009660.pub3.
8
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9
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10
Parental perspectives on the financial impact of caring for a child with CKD.父母对照顾患有慢性肾脏病儿童的经济影响的看法。
Am J Kidney Dis. 2015 Mar;65(3):384-93. doi: 10.1053/j.ajkd.2014.07.019. Epub 2014 Sep 20.