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自闭症的功能性性别差异:基于国际功能、残疾和健康分类模型的国际多学科专家调查。

Functional gender differences in autism: An international, multidisciplinary expert survey using the International Classification of Functioning, Disability, and Health model.

机构信息

Karolinska Institutet, Sweden.

Uppsala University, Sweden.

出版信息

Autism. 2021 May;25(4):1020-1035. doi: 10.1177/1362361320975311. Epub 2020 Dec 2.

Abstract

In this study, we explored if professionals working with autistic people in different regions of the world perceive differences between females and males diagnosed with the condition. A total of 131 professionals responded to a survey that included an open question about gender differences in autism. Of these, 32 responded that they do not perceive gender differences in autism. The information provided by the other 99 experts was analyzed to identify common patterns. Three main differences were found, (1) where professionals described differences in core symptoms of autism, and that autistic females were less similar to the conceptualization of autism. In (2) , professionals described that autistic males display more apparent problems including hyperactivity, while autistic females were perceived as having more internalizing issues such as anxiety and eating disorders. In the last category, (3) , experts perceived autistic females as more socially motivated, and more inclined to camouflage social difficulties, making their challenges less evident. Professionals also perceived differences in the social environment, for example, that autistic girls receive more support from their peers while autistic boys are more often bullied. Our results suggest that professionals working in different parts of the world acknowledge gender differences in autism, but also that there might be some regional differences. Finally, we found that gender differences reported by the international professionals could largely be assessed with a shortened version of the International Classification of Functioning by the World Health Organization, specifically developed for autism.

摘要

在这项研究中,我们探讨了世界不同地区从事自闭症工作的专业人员是否能察觉到被诊断为自闭症的女性和男性之间的差异。共有 131 名专业人员对一项调查做出了回应,其中包括一个关于自闭症性别差异的开放性问题。其中 32 人表示他们没有察觉到自闭症的性别差异。对其他 99 名专家提供的信息进行了分析,以确定常见模式。发现了三个主要的差异:(1)专业人员描述了自闭症核心症状方面的差异,而且自闭症女性与自闭症的概念化不太相似。在(2)中,专业人员描述说,自闭症男性表现出更明显的问题,包括多动,而自闭症女性则被认为存在更多的内化问题,如焦虑和饮食失调。在最后一个类别(3)中,专家认为自闭症女性更有社交动机,更倾向于掩饰社交困难,使她们的挑战不那么明显。专业人员还察觉到了社会环境的差异,例如,自闭症女孩会从同龄人那里得到更多的支持,而自闭症男孩则更容易被欺负。我们的研究结果表明,来自世界各地的专业人员承认自闭症存在性别差异,但也可能存在一些地区差异。最后,我们发现国际专业人员报告的性别差异可以通过世界卫生组织专门为自闭症制定的《国际功能、残疾和健康分类》的缩短版进行大致评估。

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