Department of Liberal Arts, Indian Institute of Technology Hyderabad, Hyderabad, India.
Centre for Medical Psychology & Evidence-based Decision-making, School of Psychology, The University of Sydney, Sydney, New South Wales, Australia.
Cancer Rep (Hoboken). 2021 Apr;4(2):e1316. doi: 10.1002/cnr2.1316. Epub 2020 Dec 9.
In India, caregivers are an integral part of the illness experience, especially in cancer, to the extent that they can become proxy decision-makers for the patient. Further, owing to acute resource constraints in the Indian healthcare system, it may be difficult for oncologists to assess and elicit questions from each patient/caregiver. Consequently, there is a need to address these unique aspects of oncology care in India to improve patient outcomes and understanding of their illness and treatment. This can be achieved through a Question Prompt List (QPL), a checklist used by care recipients during medical consultations.
This narrative review will first introduce research on the development and effectiveness of the QPL, and then it will highlight current gaps in oncology care in India and explore how the QPL may aid in closing these gaps. A literature search of the empirical research focused on the development, feasibility and acceptability of the QPL in oncology settings was conducted. The final review included 40 articles pertaining to QPL research. Additionally, psycho-oncology research in India centered on information needs and experiences was reviewed. Current Indian psycho-oncology research reports patients' want to be actively involved in their cancer care and a need for more illness information. However, a high demand on physicians' resources and the family caregivers' interference can be barriers to meeting patients' information/communication needs. International research demonstrates that a QPL helps structure and decrease consultation time, improves patient satisfaction with care, and improves the quality of communication during medical encounters.
QPLs for Indian patients and caregivers may focus on the scope of medical consultations to address patient needs while influencing the course and content of the patient-caregiver-physician interactions. Further, it can address the resource constraints in Indian oncology care settings, thus reducing the physician's burden.
在印度,护理人员是疾病体验的重要组成部分,尤其是在癌症中,他们甚至可以成为患者的代理决策者。此外,由于印度医疗保健系统资源严重短缺,肿瘤医生可能难以评估每位患者/护理人员并向他们提问。因此,需要解决印度肿瘤护理方面的这些独特问题,以改善患者的预后并让他们更好地了解自己的疾病和治疗方法。这可以通过问题提示清单(QPL)来实现,QPL 是一种护理接受者在医疗咨询期间使用的清单。
本叙述性综述首先将介绍 QPL 的开发和有效性研究,然后将重点介绍印度肿瘤护理方面的当前差距,并探讨 QPL 如何帮助弥合这些差距。对 QPL 在肿瘤学领域的开发、可行性和可接受性的实证研究进行了文献检索。最终的综述共纳入 40 篇与 QPL 研究相关的文章。此外,还回顾了印度心理肿瘤学研究中心关于信息需求和经验的研究。目前,印度心理肿瘤学研究报告称,患者希望积极参与他们的癌症护理,并需要更多的疾病信息。然而,医生资源的高度需求和家庭护理人员的干扰可能会成为满足患者信息/沟通需求的障碍。国际研究表明,QPL 有助于构建和减少咨询时间,提高患者对护理的满意度,并改善医疗就诊期间的沟通质量。
针对印度患者和护理人员的 QPL 可能侧重于医疗咨询的范围,以满足患者的需求,同时影响患者-护理人员-医生的互动过程和内容。此外,它可以解决印度肿瘤护理环境中的资源限制问题,从而减轻医生的负担。