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菲律宾脊髓损伤患者使用辅助技术的体验:从职业公正的角度看。

Experience of Filipinos with Spinal Cord Injury in the Use of Assistive Technology: An Occupational Justice Perspective.

机构信息

Department of Occupational Therapy, Graduate School of Human Health Sciences, Tokyo Metropolitan University, Tokyo, Japan.

National Teacher Training Centre for the Health Professions, University of the Philippines, Manila, Philippines.

出版信息

Occup Ther Int. 2020 Nov 25;2020:6696296. doi: 10.1155/2020/6696296. eCollection 2020.

Abstract

Assistive technology (AT) is often required to facilitate the performance of occupations and promote inclusion and reduction of dependency among persons with spinal cord injury (SCI). However, only 5-15% of individuals in developing countries have access to AT. This study is aimed at exploring the experience of Filipinos with SCI as they use AT and understand these from an occupational justice (OJ) perspective. This study utilised a hermeneutic phenomenological approach to explore the participants' experiences with AT usage. Ten participants were recruited from a hospital and communities within Metro Manila, Philippines, and interviewed last January 2020. Hermeneutic analysis was done to interpret the shared meaning embedded within their experiences and was informed by an occupational justice perspective. Exploring the experience of the participants in using AT yielded four themes, namely, (1) engaging in occupations despite limited opportunities, (2) going to various locations amidst an inaccessible environment, (3) striving towards inclusion in spite of attitudinal barriers, and (4) securing needs in light of unfavourable life conditions. Filipinos with SCI deal with numerous structural and contextual factors in daily life. There has been partial enablement of OJ as they incorporate AT in their daily lives as occupational rights are far from being recognised and respected. In infusing an OJ perspective to understanding AT use, OT practitioners are bound to identify problems and courses of action that go beyond traditional service delivery.

摘要

辅助技术(AT)通常是为了促进脊髓损伤(SCI)患者完成职业活动、提升其融入社会的能力并减少对他人的依赖。然而,在发展中国家仅有 5-15%的人能够获得 AT。本研究旨在从职业正义(OJ)的角度探讨菲律宾 SCI 患者使用 AT 的体验,并理解他们的经历。本研究采用解释现象学的方法来探索参与者使用 AT 的体验。2020 年 1 月,从菲律宾马尼拉的一家医院和社区招募了 10 名参与者进行访谈。解释学分析解释了他们的经验中所包含的共同意义,并受到职业正义观点的启发。探索参与者使用 AT 的体验产生了四个主题,分别是:(1)尽管机会有限,仍积极参与职业活动;(2)在难以到达的环境中前往各种地方;(3)尽管存在态度障碍,但仍努力争取包容;(4)根据不利的生活条件确保需求。菲律宾 SCI 患者在日常生活中面临着许多结构性和情境性因素。尽管 OJ 部分得到了实现,因为他们将 AT 融入日常生活中,但职业权利远未得到承认和尊重。在将 OJ 观点融入对 AT 使用的理解中,OT 从业者必须确定超出传统服务提供范围的问题和行动方案。

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