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参与式方法制定脊髓损伤患者健康教育:职业公平视角。

Participatory Methods to Develop Health Education for PW-SCI: Perspectives on Occupational Justice.

出版信息

Can J Occup Ther. 2023 Mar;90(1):55-67. doi: 10.1177/00084174221116250. Epub 2022 Jul 26.

DOI:10.1177/00084174221116250
PMID:35892134
Abstract

Many people with spinal cord injury (PW-SCI) in the Gaza Strip in Palestine are discharged from inpatient rehabilitation with limitations in their ability to meet basic needs, and reach their full potential. There is limited evidence of how clinicians can promote occupational justice for PW-SCI. To describe participants' perspectives revealed during a participatory action research (PAR) process used to develop an education manual for PW-SCI in Gaza, using Participatory Occupational Justice as a lens. Following ethical approval, a four-step PAR design was utilized by eight researchers to co-construct the Spinal Cord Injury Activities of Daily Living-education Manual with 54 participants from SCI rehabilitation settings in Gaza. Qualitative data from eight focus groups were analyzed using inductive thematic analysis. Two main themes were evident in the participants' viewpoints: Enabling occupational justice and Removing barriers to occupational justice. Occupational justice is a central value that needs to be considered when developing occupational therapy educational interventions for this client group. PW-SCI health education may facilitate occupational justice in practical and culturally relevant ways when participatory methods are used to develop educational resources.

摘要

许多在巴勒斯坦加沙地带患有脊髓损伤(PW-SCI)的人在住院康复后出院,他们在满足基本需求和发挥全部潜力方面存在限制,但目前几乎没有证据表明临床医生如何能够促进脊髓损伤患者的职业公正。本研究旨在描述在加沙开展的一项参与行动研究(PAR)过程中参与者的观点,该研究使用参与性职业公正作为视角,目的是为加沙的脊髓损伤患者开发一本教育手册。研究获得伦理批准后,8 名研究人员采用四步 PAR 设计,与来自加沙脊髓损伤康复机构的 54 名参与者共同构建脊髓损伤日常生活活动教育手册。使用归纳主题分析法对 8 个焦点小组的定性数据进行分析。参与者的观点中有两个主要主题:实现职业公正和消除职业公正障碍。当使用参与式方法开发教育资源时,职业公正对于开发针对这一患者群体的职业治疗教育干预措施是一个核心价值。PW-SCI 健康教育可以通过使用参与性方法来促进职业公正,从而以实际和文化相关的方式实现职业公正。

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Occup Ther Int. 2023 Oct 24;2023:8671123. doi: 10.1155/2023/8671123. eCollection 2023.
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JMIR Res Protoc. 2022 Jul 22;11(7):e30611. doi: 10.2196/30611.