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慢性神经系统疾病青年在数字时代的指导:支持过渡的创新方法。

Mentorship for Youth With Chronic Neurological Conditions in the Digital Era: An Innovative Approach to Supporting Transition.

机构信息

Division of Child Neurology, Boston Medical Center, Boston, MA.

Division of Child Neurology, Department of Pediatrics, Boston Medical Center, Boston, MA.

出版信息

Semin Pediatr Neurol. 2020 Dec;36:100857. doi: 10.1016/j.spen.2020.100857. Epub 2020 Oct 26.

DOI:10.1016/j.spen.2020.100857
PMID:33308521
Abstract

This article aims to highlight the impact of mentorship on the lives of youth with chronic conditions (YCC). Here, we focus on the concepts of mentoring and technology as a means to support transitioning YCC. This is in response to the urgent need for effective healthcare transition strategies and the increasing importance and prevalence of technology in healthcare and health systems. This article also highlights an e-mentoring program for youth with epilepsy, an intervention that bridges the fields of mentoring, transition, and technology. While there is need for further research in these areas, consideration of these factors are highly relevant to the effort to improve health for this generation of YCC.

摘要

本文旨在强调指导对患有慢性疾病的青年(YCC)生活的影响。在这里,我们专注于指导和技术的概念,将其作为支持 YCC 过渡的手段。这是为了应对有效医疗过渡策略的迫切需求,以及技术在医疗保健和医疗体系中的重要性和普及性日益增加。本文还重点介绍了针对癫痫青年的电子指导计划,该干预措施弥合了指导、过渡和技术领域的差距。虽然这些领域需要进一步研究,但考虑这些因素与改善这一代 YCC 的健康状况密切相关。

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Semin Pediatr Neurol. 2020 Dec;36:100857. doi: 10.1016/j.spen.2020.100857. Epub 2020 Oct 26.
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引用本文的文献

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[Transitioning care for adolescents with chronic health conditions and disabilities to adult services].[为患有慢性健康问题和残疾的青少年提供从儿童到成人服务的过渡性护理]
Cad Saude Publica. 2025 Jun 9;41(5):e00071224. doi: 10.1590/0102-311XPT071224. eCollection 2025.
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Telemedicine in nutritional management of children with severe neurological impairment: implication for quality of life.远程医疗在重度神经功能障碍儿童营养管理中的应用:对生活质量的影响
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