Tagi Veronica Maria, Eletti Francesca, Dolor Jonabell, Zuccotti Gianvincenzo, Montanari Chiara, Verduci Elvira
Department of Pediatrics, Vittore Buzzi Children's Hospital, Milan, Italy.
Department of Biomedical and Clinical Science, University of Milan, Milan, Italy.
Front Nutr. 2024 Aug 19;11:1452880. doi: 10.3389/fnut.2024.1452880. eCollection 2024.
Children with severe neurological impairment (SNI) frequently present feeding problems requiring a close monitoring of their nutritional status. In addition to constant clinical monitoring of body composition and nutritional indexes in these patients, frequent reports of dietary intake and weight gain variations are useful to ensure proper nutritional management. Furthermore, non-oral feeding is often needed to avoid malnutrition or aspiration pneumonia, constantly necessitating medical assistance. Despite their necessity for frequent hospital accesses, these patients' disabilities represent an important obstacle to accessing care, generating anxiety and concern in children and their families. Telemedicine has proven to be a promising instrument for improving pediatric patients' healthcare in several fields. By breaking down geographical and temporal barriers, telehealth may represent a valuable tool to implement in clinical practice, in order to improve patients' outcomes and quality of life. The aim of this narrative review is to provide an overview of the main nutritional issues in children with SNI, the potential implications of telemedicine in their management and the available evidence regarding the effects and benefits of telehealth.
患有严重神经功能障碍（SNI）的儿童经常出现喂养问题，需要密切监测其营养状况。除了对这些患者的身体成分和营养指标进行持续的临床监测外，频繁报告饮食摄入量和体重增加变化对于确保适当的营养管理很有用。此外，通常需要非经口喂养以避免营养不良或吸入性肺炎，这一直需要医疗援助。尽管这些患者需要频繁就医，但他们的残疾是获得护理的一个重要障碍，给儿童及其家庭带来焦虑和担忧。远程医疗已被证明是在多个领域改善儿科患者医疗保健的一种有前景的手段。通过打破地理和时间障碍，远程健康可能是临床实践中可采用的一种有价值的工具，以改善患者的治疗效果和生活质量。本叙述性综述的目的是概述SNI儿童的主要营养问题、远程医疗在其管理中的潜在影响以及关于远程健康的效果和益处的现有证据。
