Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
Int Wound J. 2021 Jun;18(3):287-311. doi: 10.1111/iwj.13533. Epub 2020 Dec 13.
Living with chronic ulcers can be burdensome and restrictive, with regard to not only physical and psychological but also social well-being. This review aims to analyse social participation in patients with chronic wounds and to compare results across different wound types. A search string was applied in several electronic databases. Results were screened according to predefined inclusion and exclusion criteria. Data of eligible articles were extracted and synthesised narratively. The search revealed 42 eligible publications. Only minor differences across different ulcer types could be detected. Overall, family members were the main social contacts for patients; they often provided wound care and emotional support. Patients had few non-family relations, but those existing were often very close. Patients felt guilty as their condition imposed burden on family and friends, as well. A close relationship with nurses was described. Restrictions were caused by direct and indirect consequences of the wound. Overall, social support and social connections were reduced in wound patients. Inconsistent results were found regarding social isolation. In summary, people with chronic wounds experience impairments in all aspects of social participation. Therefore, social participation deserves increased attention in routine care both as a trigger of burden and as an outcome of therapy.
患有慢性溃疡可能会带来身体、心理和社会福祉等多方面的负担和限制。本综述旨在分析慢性伤口患者的社会参与情况，并比较不同类型伤口的结果。我们在多个电子数据库中应用了搜索字符串。根据预先设定的纳入和排除标准对结果进行了筛选。提取合格文章的数据并进行叙述性综合。搜索结果显示有 42 篇合格的出版物。仅在不同溃疡类型之间发现了一些细微的差异。总体而言，家庭成员是患者的主要社会联系者；他们经常提供伤口护理和情感支持。患者的非家庭成员关系很少，但现有的关系往往非常密切。患者感到内疚，因为他们的病情给家人和朋友带来了负担。还描述了与护士的密切关系。限制是由伤口的直接和间接后果引起的。总的来说，伤口患者的社会支持和社会联系减少了。关于社会孤立，结果存在差异。总之，患有慢性溃疡的人在社会参与的各个方面都受到了影响。因此，社会参与在常规护理中应得到更多关注，既可以作为负担的触发因素，也可以作为治疗的结果。
