Faculty of Dentistry, Department of Orthodontics, Kermanshah University of Medical Sciences, Kermanshah, Iran.
Department of Psychiatric Nursing, School of Nursing and Midwifery, Kermanshah University of Medical Sciences, Kermanshah, Iran.
Cleft Palate Craniofac J. 2021 Sep;58(9):1135-1141. doi: 10.1177/1055665620980606. Epub 2020 Dec 17.
Cleft lip and palate (CLP) is a congenital anomaly that affects not only the patients but also their family members and companions. Identifying the problems encountered by patients with CLP and their families can greatly help clinicians in efficient treatment planning to obviate the treatment needs and promote the quality of life of patients. This study aimed to determine the experiences of the parents of children with CLP undergoing orthodontic treatment.
This study was conducted based on descriptive phenomenology using the Colaizzi's 7-step analysis method of phenomenological data. The private orthodontic clinics of Kermanshah city were evaluated in this study. The participants included the parents of children with CLP younger than 15 years who had presented to the clinics seeking orthodontic treatment. In-depth semistructured interviews with open-ended questions were used to collect information regarding the experiences of parents in this process. The collected data were analyzed using the Colaizzi's 7-step analysis.
Qualitative analysis of the interviews yielded 271 codes, 18 subthemes, 7 themes, and 3 main themes including fatigue (exhaustion, helplessness, and incompetence), self-reliance (mutual support and empathy), and the need for social support (counseling services and citizenship rights).
In general, the results revealed that parents of children with CLP under orthodontic treatment are vulnerable due to their previous adverse experiences in the course of treatment of their children and need support in several physical, psychological, social and spiritual domains.
唇腭裂（CLP）是一种先天畸形，不仅影响患者，还影响其家属和同伴。了解唇腭裂患者及其家属所面临的问题，可以极大地帮助临床医生进行有效的治疗计划，以避免治疗需求并提高患者的生活质量。本研究旨在确定接受正畸治疗的唇腭裂儿童家长的体验。
本研究基于描述现象学，采用科莱兹的 7 步现象学数据分析方法进行。本研究评估了克尔曼沙赫市的私人正畸诊所。参与者包括前来诊所寻求正畸治疗的年龄在 15 岁以下的唇腭裂儿童的家长。使用开放式深入半结构式访谈收集有关家长在此过程中体验的信息。使用科莱兹的 7 步分析对收集的数据进行分析。
访谈的定性分析产生了 271 个代码、18 个子主题、7 个主题和 3 个主要主题，包括疲劳（疲惫、无助和无能）、自力更生（相互支持和同理心）和社会支持的需求（咨询服务和公民权利）。
总的来说，结果表明，接受正畸治疗的唇腭裂儿童的家长由于其子女治疗过程中的先前不良经历而处于脆弱状态，他们在身体、心理、社会和精神等多个领域需要支持。
