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Dermlep研究第二部分:印度皮肤科医生在其诊所和医院获取优质麻风病服务情况的全国性调查结果。

The Dermlep Study Part 2: Results of a Nation-Wide Survey of Dermatologists' Access to Quality Leprosy Services at their Clinics and Hospitals in India.

作者信息

Rao P Narasimha, Rathod Santoshdev, Suneetha Sujai, Dogra Sunil, Vora Rita, Gupta Sunil Kumar

机构信息

Department of Dermatology, Bhaskar Medical College, Hyderabad, Telangana, India.

Department of Dermatology, Smt. NHL Municipal Medical College, Ahmedabad, India.

出版信息

Indian Dermatol Online J. 2020 Nov 8;11(6):895-903. doi: 10.4103/idoj.IDOJ_668_20. eCollection 2020 Nov-Dec.

Abstract

INTRODUCTION

Dermatologists in India are trained and qualified to treat leprosy and there is evidence to suggest that they are involved in the diagnosis and management of a significant number of leprosy patients in the country. The present study evaluated the access to quality leprosy services at their clinics and hospitals to understand the extent of their role in providing comprehensive care to people affected by leprosy and how it can be organized further.

METHODS

The DermLep Study was a pan-India questionnaire-based survey carried out to evaluate the role that dermatologists play in leprosy management in the country. It included as part-2 of the survey, 11 questions on the access of the dermatologist to various quality leprosy services available at the clinic or institution including skin smears, skin biopsy, multidrug therapy (MDT) blister packs, basic physiotherapy services, and reporting to the national program (NLEP).

RESULTS

The dermatologists who participated in the survey included 101 private practitioners and 100 working in Government or private medical institutions. The key findings of the survey were that 78% of the participating dermatologists still encounter leprosy patients frequently in their clinics; 81.0% of them had access to skin smears; and 93.4% to skin biopsy. The World Health Organization (WHO) MDT regimen was followed by 79.0% of the dermatologists in the study, majority of whom were those working in medical colleges (88%); however overall, 87.4% extended the regimen beyond the fixed duration, mostly on a case to case basis. Thalidomide was available for 61.1% of them to treat type 2 reactions. Basic physiotherapy services were available with 70.2% of dermatologists surveyed; 58.9% dermatologists had access to MCR footwear; and RCS facility access known to 45.5% of them. About 83.5% of the dermatologists working in institutions were reporting their leprosy cases to the NLEP, whereas from a high percentage (71.4%) of dermatologists in private practice, cases were not captured in routine under NLEP.

CONCLUSION

Dermatologists in India have the clinical skill, expertise, and access to most of the basic services, including skin smear and skin biopsy facilities needed to provide comprehensive care to leprosy patients in post-elimination era of integration of leprosy services. While dermatologists are already managing leprosy patients both at medical institutes and private clinics across India, their "structured" involvement at all levels in the national program will facilitate improved reporting and cataloging of cases seen by them. It will also elevate standards of leprosy care; create an effective public-private partnership and disease expertise; and assist develop a comprehensive, patient-tailored approach in the leprosy program in India.

摘要

引言

印度的皮肤科医生接受过治疗麻风病的培训且具备相应资质,有证据表明他们参与了该国大量麻风病患者的诊断和管理工作。本研究评估了他们诊所和医院提供优质麻风病服务的情况,以了解他们在为麻风病患者提供全面护理方面所发挥作用的程度以及如何进一步优化。

方法

“DermLep研究”是一项基于问卷调查的全印度范围的调查,旨在评估皮肤科医生在该国麻风病管理中所起的作用。作为调查的第二部分,该研究包含11个问题,涉及皮肤科医生在诊所或机构获取各种优质麻风病服务的情况,包括皮肤涂片、皮肤活检、多药联合疗法(MDT)泡罩包装、基本物理治疗服务以及向国家项目(全国麻风病消除项目,NLEP)报告病例等。

结果

参与调查的皮肤科医生包括101名私人执业医生和100名在政府或私立医疗机构工作的医生。调查的主要发现是,78%的参与调查的皮肤科医生在其诊所中仍经常遇到麻风病患者;81.0%的医生能够进行皮肤涂片检查;93.4%的医生能够进行皮肤活检。该研究中79.0%的皮肤科医生遵循世界卫生组织(WHO)的MDT治疗方案,其中大多数是在医学院工作的医生(88%);然而总体而言,87.4%的医生将治疗方案延长至固定疗程之外,大多是根据具体病例情况。61.1%的医生可获得沙利度胺用于治疗2型反应。70.2%接受调查的皮肤科医生所在机构提供基本物理治疗服务;58.9%的皮肤科医生能够获取麻风病康复者专用鞋;他们中有45.5%知道有康复指导与咨询服务(RCS)设施。在机构工作的皮肤科医生中约83.5%会向NLEP报告他们的麻风病病例,而在私人执业的皮肤科医生中,有较高比例(71.4%)的病例在NLEP的常规工作中未被记录。

结论

在麻风病服务整合的消除后时代,印度的皮肤科医生具备临床技能、专业知识,且能够获取大多数基本服务,包括为麻风病患者提供全面护理所需的皮肤涂片和皮肤活检设施。虽然皮肤科医生已经在印度各地的医疗机构和私人诊所管理麻风病患者,但他们在国家项目各级的“结构化”参与将有助于改善他们所诊治病例的报告和编目工作。这也将提升麻风病护理标准;建立有效的公私伙伴关系和疾病专业知识体系;并有助于在印度的麻风病项目中制定全面的、针对患者的治疗方法。

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