Department of Health Care Sciences, Ersta Sköndal Bräcke University College, Stockholm, Sweden.
Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.
BMC Womens Health. 2020 Dec 22;20(1):276. doi: 10.1186/s12905-020-01133-z.
Less attention has been given to younger adults' psycho-oncology care needs than to children and older adults with cancer. The aim was to explore how care following end-of-treatment was perceived by women treated for different gynecologic cancer diagnoses during younger adulthood.
A sample of 207 women diagnosed with gynecologic cancer 2008 to 2016, aged 19-39 at time of diagnosis answered one open-ended question regarding important aspects of care after end-of-treatment. The written responses were analyzed with manifest content analysis and presented in relation to the women's diagnoses, i.e., cervical (n = 130), ovarian (n = 57), and other gynecologic cancer diagnoses (n = 20).
The analysis resulted in three categories: Unmet long-term supportive care needs, Satisfying long-term supportive care, and Health care organizational difficulties. Over half of the women (66.7%) described unmet care needs. The corresponding figures were 80.7, 63.1 and 50% for women diagnosed with ovarian, cervical and other gynecologic cancer diagnoses, respectively. Satisfying supportive care were described by approximately one quarter of the women (26.1%). Among women diagnosed with ovarian cancer 14% described satisfying supportive care. The corresponding figures were 26.9 and 30% for women diagnosed with cervical cancer and other gynecological diagnoses, respectively. Approximately one quarter of the women, irrespectively of diagnosis, described aspects related to health care organizational difficulties (28%).
The results highlight the importance of good quality care linked to the diagnosis and based on an understanding of the woman's need, desire and expectation of support after end-of-treatment.
相比癌症儿童和老年患者，年轻癌症患者的心理肿瘤学护理需求较少受到关注。本研究旨在探讨年轻成年女性在癌症治疗结束后对治疗后护理的看法，这些女性患有不同的妇科癌症。
本研究纳入了 207 名 2008 年至 2016 年间诊断为妇科癌症的年轻成年女性（诊断时年龄 19-39 岁），她们回答了一个关于治疗结束后护理的重要方面的开放性问题。通过显式内容分析对书面回复进行分析，并根据女性的诊断（宫颈癌 n=130、卵巢癌 n=57 和其他妇科癌症诊断 n=20）进行呈现。
分析结果得出了三个类别：未满足的长期支持性护理需求、满足的长期支持性护理和医疗保健组织困难。超过一半的女性（66.7%）描述了未满足的护理需求。相应的比例分别为卵巢癌诊断女性的 80.7%、宫颈癌诊断女性的 63.1%和其他妇科癌症诊断女性的 50%。约四分之一的女性（26.1%）描述了满足的支持性护理。其中，卵巢癌诊断女性中有 14%描述了满足的支持性护理，而宫颈癌诊断女性和其他妇科癌症诊断女性的相应比例分别为 26.9%和 30%。大约四分之一的女性（无论诊断如何）描述了与医疗保健组织困难相关的方面（28%）。
研究结果强调了良好质量的护理的重要性，这种护理与诊断相关，并基于对女性在治疗结束后对支持的需求、愿望和期望的理解。
