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Prevalence and functioning of children with cerebral palsy in four areas of the United States in 2006: a report from the Autism and Developmental Disabilities Monitoring Network.2006 年美国四个地区脑瘫儿童的患病率和功能状况:来自自闭症和发育障碍监测网络的报告。
Res Dev Disabil. 2011 Mar-Apr;32(2):462-9. doi: 10.1016/j.ridd.2010.12.042. Epub 2011 Jan 26.
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Prevalence and lifetime healthcare cost of cerebral palsy in South Korea.韩国脑瘫的患病率和终身医疗费用。
Health Policy. 2011 May;100(2-3):234-8. doi: 10.1016/j.healthpol.2010.09.010. Epub 2010 Oct 16.
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A report: the definition and classification of cerebral palsy April 2006.一份报告:《脑性瘫痪的定义与分类》,2006年4月
Dev Med Child Neurol Suppl. 2007 Feb;109:8-14.
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Gross Motor Function Classification System used in adults with cerebral palsy: agreement of self-reported versus professional rating.用于成人脑瘫患者的粗大运动功能分类系统:自我报告与专业评定的一致性
Dev Med Child Neurol. 2006 Sep;48(9):734-8. doi: 10.1017/S0012162206001575.
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Long-term survival for a cohort of adults with cerebral palsy.
Dev Med Child Neurol. 2006 Feb;48(2):90-5. doi: 10.1017/S0012162206000211.
6
Descriptions of functioning and health and relations to a gross motor classification in adults with cerebral palsy.脑瘫成人的功能、健康状况描述及其与粗大运动分类的关系。
Disabil Rehabil. 2004 Sep 2;26(17):1023-31. doi: 10.1080/09638280410001703503.
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Functional status of adults with cerebral palsy and implications for treatment of children.
Dev Med Child Neurol. 2001 Aug;43(8):516-28. doi: 10.1017/s0012162201000950.
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Adults with cerebral palsy: a survey describing problems, needs, and resources, with special emphasis on locomotion.成年脑瘫患者:一项描述问题、需求和资源的调查,特别强调运动能力。
Dev Med Child Neurol. 2001 Feb;43(2):76-82. doi: 10.1017/s0012162201.
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Medical and functional status of adults with cerebral palsy.成人脑瘫患者的医学和功能状况。
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Health care of physically handicapped young adults.身体残疾的年轻人的医疗保健。
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韩国脑瘫成人的医疗与康复服务需求

Needs for Medical and Rehabilitation Services in Adults With Cerebral Palsy in Korea.

作者信息

Park Myung Woo, Kim Won Sep, Bang Moon Suk, Lim Jae Young, Shin Hyung-Ik, Leigh Ja-Ho, Kim Keewon, Kwon Bum Sun, Jang Soong-Nang, Jung Se Hee

机构信息

Department of Rehabilitation Medicine, Seoul National University Hospital, Seoul, Korea.

Department of Rehabilitation Medicine, Seoul National University Bundang Hospital, Seongnam, Korea.

出版信息

Ann Rehabil Med. 2018 Jun 27;42(3):465-472. doi: 10.5535/arm.2018.42.3.465.

DOI:10.5535/arm.2018.42.3.465
PMID:29961745
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6058592/
Abstract

OBJECTIVE

To investigate medical comorbidities and needs for medical and rehabilitation services of adults with cerebral palsy (CP) in Korea.

METHODS

This was a prospective cross-sectional study. One hundred fifty-four adults with CP were enrolled in the study between February 2014 and December 2014. Information was obtained from participants regarding functional status, demographic and socioeconomic data, medical problems, and requirements for and utilization of medical and rehabilitation services.

RESULTS

The participants included 93 males and 61 females with a mean age of 40.18±9.15 years. The medical check-up rate of adults with CP was lower than that of healthy adults and the total population with disabilities (53.2% vs. 58.6% vs. 70.4%). A quarter of the subjects failed to visit the hospital during the past year, and the main reason was the financial burden. Due to a cost burden and lack of knowledge, more than one-third of the subjects had unmet needs for rehabilitation services; the majority reported needs for rehabilitation services, such as physical therapy for pain management.

CONCLUSION

The medical check-up rate was lower in the adults with CP, even though their medical comorbidities were not less than those of healthy people. Several non-medical reasons hindered them from receiving proper medical and rehabilitation services. Such barriers should be managed effectively.

摘要

目的

调查韩国成年脑瘫患者的合并症以及对医疗和康复服务的需求。

方法

这是一项前瞻性横断面研究。2014年2月至2014年12月期间,154名成年脑瘫患者被纳入研究。从参与者那里获取了有关功能状态、人口统计学和社会经济数据、医疗问题以及医疗和康复服务的需求与利用情况的信息。

结果

参与者包括93名男性和61名女性,平均年龄为40.18±9.15岁。成年脑瘫患者的体检率低于健康成年人和残疾人群体(分别为53.2%、58.6%和70.4%)。四分之一的受试者在过去一年中未去医院就诊,主要原因是经济负担。由于费用负担和知识匮乏,超过三分之一的受试者对康复服务有未满足的需求;大多数人表示需要康复服务,如用于疼痛管理的物理治疗。

结论

成年脑瘫患者的体检率较低,尽管他们的合并症并不少于健康人群。一些非医疗原因阻碍了他们获得适当的医疗和康复服务。应有效解决这些障碍。