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成人癌症幸存者在治疗后获取饮食信息的需求、偏好和体验:一项范围综述。

Needs, preferences, and experiences of adult cancer survivors in accessing dietary information post-treatment: A scoping review.

机构信息

School of Exercise and Nutrition Sciences, Queensland University of Technology (QUT), Kelvin Grove, QLD, Australia.

School of Psychology and Counselling, Queensland University of Technology (QUT), Kelvin Grove, QLD, Australia.

出版信息

Eur J Cancer Care (Engl). 2021 Mar;30(2):e13381. doi: 10.1111/ecc.13381. Epub 2020 Dec 30.

DOI:10.1111/ecc.13381
PMID:33377564
Abstract

INTRODUCTION

To support provision of healthy lifestyle information tailored to patients' needs and preferences, this review maps adult cancer survivors' self-reported needs, preferences, and experiences accessing dietary information post-treatment.

METHODS

A scoping review of research published within the past decade conducted using PRISMA-ScR guidelines. Seven databases were searched in June 2020.

RESULTS

Of 15,973 articles identified, 57 met eligibility criteria. Studies most frequently included survivors of breast cancer (49%), persons aged 40+ years (95%), ≤5 years post-diagnosis (54%), and residing in North America (44%). Cancer survivors commonly identified needing information regarding healthy eating, particularly practical skills, and support in changing dietary behaviours. Preferences included specific recommendations, direct communication with healthcare professionals, and peer support from other cancer survivors. In practice, survivors frequently reported receiving generic advice from healthcare professionals, limited dietary follow-up, and lack of referral to support. Unmet needs in healthcare settings led to dietary information-seeking elsewhere; however, survivors indicated difficulty identifying credible sources. Personal beliefs and desire for involvement in care motivated dietary information-seeking post-treatment.

CONCLUSION

Cancer survivors' experiences accessing dietary information post-treatment do not align with needs and preferences. Less is known about survivors who are young adults, >5 years post-diagnosis, and living in rural areas.

摘要

简介

为了支持提供针对患者需求和偏好的健康生活方式信息,本综述绘制了成年癌症幸存者在治疗后获取饮食信息的自我报告需求、偏好和体验。

方法

使用 PRISMA-ScR 指南对过去十年发表的研究进行了范围综述。于 2020 年 6 月在七个数据库中进行了搜索。

结果

在确定的 15973 篇文章中,有 57 篇符合入选标准。研究中最常包括乳腺癌幸存者(49%)、40 岁以上人群(95%)、诊断后 5 年以内(54%)和居住在北美(44%)的患者。癌症幸存者通常表示需要有关健康饮食的信息,特别是实用技能方面的信息,并希望在改变饮食行为方面得到支持。他们更倾向于获得特定的建议、与医疗保健专业人员的直接沟通以及来自其他癌症幸存者的同伴支持。在实践中,幸存者经常报告从医疗保健专业人员那里获得一般性建议、饮食随访有限以及缺乏转介支持。在医疗保健环境中未满足的需求导致他们在其他地方寻求饮食信息,但幸存者表示难以确定可靠的来源。个人信念和参与治疗的愿望促使他们在治疗后寻求饮食信息。

结论

癌症幸存者在治疗后获取饮食信息的体验与需求和偏好不相符。对于年龄在 5 年以上、年轻成人和居住在农村地区的幸存者,人们了解得较少。

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