Goodwin Belinda C, Zajdlewicz Leah, Stiller Anna, Johnston Elizabeth A, Myers Larry, Aitken Joanne F, Bergin Rebecca J, Chan Raymond J, Crawford-Williams Fiona, Emery Jon D
Cancer Council Queensland, Fortitude Valley, Queensland, Australia.
Centre for Health Research, University of Southern Queensland, Springfield, Queensland, Australia.
Psychooncology. 2023 Jul;32(7):1001-1012. doi: 10.1002/pon.6169. Epub 2023 May 29.
To conduct a systematic literature review to critically assess the met and unmet post-treatment information needs of cancer survivors living in rural communities in Australia, to inform the improvement of survivors' transition from treatment in major cities to community care.
Cumulative index of nursing and allied health literature, PubMed, Web of Science, Scopus, Cochrane CENTRAL and Academic Search Ultimate databases and websites of 118 cancer organisations were searched for relevant Australian studies published since 2006. Key search terms included 'rural', 'remote', 'regional', 'cancer', 'survivor*', 'living with', and 'post-treatment'. Data reflecting study source, aims, methodology, and reported information needs were extracted and summarised. Study quality was assessed using Joanna Briggs Institute tools.
Fifty-two articles met eligibility criteria. Only six of these specified a primary aim of understanding information needs for rural cancer survivors. Information on prognosis and recovery; managing treatment side effects; healthy lifestyle choices; referrals to support services, and face-to-face and written delivery of information at multiple time points were reported as needed and often lacking for rural cancer survivors.
Co-ordinated, multi-step provision of information to support health and recovery after cancer treatment and beyond is likely to be particularly important for rural cancer survivors given their broad range of needs and reduced access to health care services. Findings provide useful recommendations to facilitate patients' transition home to rural communities after cancer treatment in major cities, however, an increased understanding of the information needs of rural survivors is required to inform the development of guidelines that can be used in clinical practice.
进行一项系统的文献综述，以严格评估澳大利亚农村社区癌症幸存者治疗后已满足和未满足的信息需求，为改善幸存者从大城市的治疗过渡到社区护理提供参考。
检索护理及相关健康文献累积索引、PubMed、科学网、Scopus、Cochrane CENTRAL以及学术搜索终极数据库，以及118个癌症组织的网站，查找自2006年以来发表的相关澳大利亚研究。关键检索词包括“农村”“偏远”“地区”“癌症”“幸存者*”“与……一起生活”以及“治疗后”。提取并总结反映研究来源、目的、方法和报告的信息需求的数据。使用乔安娜·布里格斯研究所的工具评估研究质量。
52篇文章符合纳入标准。其中只有6篇将了解农村癌症幸存者的信息需求作为主要目的。据报告，农村癌症幸存者需要有关预后和康复、管理治疗副作用、健康生活方式选择、转介至支持服务以及在多个时间点进行面对面和书面信息传递的信息，而这些信息往往缺乏。
鉴于农村癌症幸存者需求广泛且获得医疗服务的机会减少，协调、多步骤地提供信息以支持癌症治疗后及之后的健康和康复可能对他们尤为重要。研究结果为促进患者在大城市接受癌症治疗后转回农村社区提供了有用的建议，然而，需要进一步了解农村幸存者的信息需求，以为可用于临床实践的指南制定提供参考。
