Department of Public and Occupational Health, Amsterdam UMC Expertise center for Palliative Care and Amsterdam Public Health Research Institute, Amsterdam UMC, University of Amsterdam, Meibergdreef 9, Amsterdam, Netherlands.
Department of Public and Occupational Health, Amsterdam UMC Expertise center for Palliative Care and Amsterdam Public Health Research Institute, Amsterdam UMC, Vrije Universiteit Amsterdam, de Boelelaan, 1117, Amsterdam, Netherlands.
BMC Palliat Care. 2021 Jan 6;20(1):5. doi: 10.1186/s12904-020-00701-2.
The aging of migrant populations across Europe challenges researchers in palliative care to produce knowledge that can be used to respond to the needs of the growing group of patients with a migration background and address ethnic disparities in palliative care. The aim of this study was to identify what factors influence researchers' efforts to address responsiveness of palliative care to patients with a migration background and other underserved populations in their projects.
We conducted semi-structured interviews with 11 researchers involved in seven projects under the Dutch national program for palliative care innovation.
Researchers' efforts to address responsiveness of palliative care in their projects were influenced by individual factors, i.e. awareness of the need for responsiveness to patients with a migration background; experience with responsiveness; and, differences in perceptions on responsiveness in palliative care. Researchers' efforts were furthermore influenced by institutional factors, i.e. the interaction with healthcare institutions and healthcare professionals as they rely on their ability to identify the palliative patient with a migration background, address the topic of palliative care, and enrol these patients in research; scientific standards that limit the flexibility needed for responsive research; and, the responsiveness requirements set by funding agencies.
Researchers play a key role in ensuring research addresses responsiveness to patients with a migration background. Such responsiveness may also benefit other underserved populations. However, at times researchers lack the knowledge and experience needed for responsive research. To address this we recommend training in responsiveness for researchers in the field of palliative care. We also recommend training for healthcare professionals involved in research projects to increase enrolment of patients with a migration background and other underrepresented populations. Lastly, we encourage researchers as well as research institutions and funding agencies to allow flexibility in research practices and set a standard for responsive research practice.
欧洲移民人口的老龄化使姑息治疗研究人员面临挑战，需要生成能够满足具有移民背景的不断增长的患者群体需求的知识，并解决姑息治疗中的种族差异问题。本研究旨在确定哪些因素会影响研究人员在项目中努力解决姑息治疗对具有移民背景和其他服务不足人群的反应能力。
我们对参与荷兰姑息治疗创新国家计划的七个项目的 11 名研究人员进行了半结构化访谈。
研究人员在项目中努力解决姑息治疗的反应能力受到个体因素的影响，即对回应具有移民背景的患者的需求的认识；回应能力的经验；以及对姑息治疗中回应能力的看法存在差异。研究人员的努力还受到制度因素的影响，即与医疗机构和医疗保健专业人员的互动，因为他们依赖他们识别具有移民背景的姑息治疗患者、解决姑息治疗问题并将这些患者纳入研究的能力；限制响应性研究所需灵活性的科学标准；以及资助机构设定的响应性要求。
研究人员在确保研究解决具有移民背景的患者的反应能力方面发挥着关键作用。这种反应能力也可能使其他服务不足的人群受益。然而，研究人员有时缺乏响应性研究所需的知识和经验。为此，我们建议为姑息治疗领域的研究人员提供响应性培训。我们还建议为参与研究项目的医疗保健专业人员提供培训，以增加具有移民背景和其他代表性不足人群的参与率。最后，我们鼓励研究人员以及研究机构和资助机构在研究实践中允许灵活性，并为响应性研究实践设定标准。
