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荷兰土耳其和摩洛哥女性参与宫颈癌筛查的决策、障碍和促进因素:一项焦点小组研究。

Decision-making, barriers, and facilitators regarding cervical cancer screening participation among Turkish and Moroccan women in the Netherlands: a focus group study.

机构信息

National Coordination Centre for Communicable Disease Control, Centre for Infectious Disease Control, National Institute for Public Health and the Environment, Bilthoven, Netherlands.

Department of Primary and Community Care, Radboud University Medical Center, Radboud Institute for Health Sciences, Nijmegen, Netherlands.

出版信息

Ethn Health. 2022 Jul;27(5):1147-1165. doi: 10.1080/13557858.2020.1863921. Epub 2021 Jan 7.

Abstract

Whether the lower Dutch cervical cancer (CC) screening participation of Turkish- and Moroccan-Dutch women is based on informed decision-making is unknown. Our aim was to explore how and why Turkish- and Moroccan-Dutch women decide to participate or not in the current Dutch CC screening programme as well as to learn their perceptions on self-sampling. Six focus group discussions were conducted between March and April 2019 with Turkish ( = 24) and Moroccan ( = 20) women in the Netherlands, aged 30-60 years. Questions were based on an extended version of the Health Belief Model. Discussions were transcribed verbatim and thematically analysed. Participants lacked knowledge about CC and its screening, and seemed to be unaware of the cons of CC screening. Perceived barriers for screening were lack of a good command of the Dutch language, having a male general practitioner, fatalism, shame and taboo, and associations of CC with lack of femininity and infertility. Other barriers were fear of the test result, cancer, suffering, death, and leaving their children behind after death. Perceived facilitators were a high perceived severity of disease, social support, and short procedure time. An additional religious facilitator included the responsibility to take care of one's own health using medical options that God provided. Participants had low self-efficacy expectations towards performing correct self-sampling. Although participants' informed-decision making seems to be limited, this study showed that women do not only consider factual medical information, but also practical, emotional, cultural, and religious aspects prior to deciding to screen or not. Information materials should be tailored to these aspects, as well as translated to appropriate languages due to lack of a good command of the Dutch language. Self-efficacy expectations towards performing correct self-sampling should be enhanced to promote informed CC screening participation among Turkish- and Moroccan-Dutch women.

摘要

荷兰下颈癌(CC)筛查参与率较低的土耳其裔和摩洛哥裔荷兰女性是否基于知情决策尚不清楚。我们的目的是探索土耳其裔和摩洛哥裔荷兰女性如何以及为何决定参与或不参与当前的荷兰 CC 筛查计划,以及了解她们对自我采样的看法。2019 年 3 月至 4 月期间,在荷兰对 30-60 岁的土耳其裔( = 24)和摩洛哥裔( = 20)女性进行了六次焦点小组讨论。问题基于健康信念模型的扩展版本。讨论内容逐字记录并进行了主题分析。参与者对 CC 和其筛查缺乏了解,似乎不知道 CC 筛查的缺点。筛查的感知障碍包括荷兰语水平低、有男性全科医生、宿命论、羞耻和禁忌,以及 CC 与缺乏女性气质和不孕有关。其他障碍包括害怕测试结果、癌症、痛苦、死亡和死后留下孩子。感知促进因素包括疾病严重程度高、社会支持和程序时间短。一个额外的宗教促进因素包括使用上帝提供的医疗选择来照顾自己健康的责任。参与者对正确进行自我采样的自我效能预期较低。尽管参与者的知情决策似乎有限,但本研究表明,女性在决定是否进行筛查时,不仅考虑到实际的医学信息,还考虑到实际、情感、文化和宗教方面。信息材料应根据这些方面进行调整,并根据缺乏荷兰语能力进行适当翻译。应增强对正确进行自我采样的自我效能预期,以促进土耳其裔和摩洛哥裔荷兰女性进行知情的 CC 筛查参与。

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