Isabel Tan Xin Wei, Mordiffi Siti Zubaidah, Lopez Violeta, Leong Katherine
Department of Nursing, National University Hospital, Singapore.
Evidence Based Nursing Unit, National University Hospital, Singapore.
Asia Pac J Oncol Nurs. 2020 Oct 15;8(1):94-102. doi: 10.4103/apjon.apjon_46_20. eCollection 2021 Jan-Feb.
This study aimed to ascertain levels of distress and contributing factors among parent caregivers of pediatric cancer patients in Singapore.
In this descriptive correlational study, parental caregivers were recruited via convenience sampling during their child's inpatient admission or outpatient appointment. They were asked to complete a self-administered demographic survey and the Distress Thermometer for Parents (DT-P) tool. Descriptive statistics, Chi-square tests, and correlation analyses were performed.
The mean DT-P score was 5.07 (standard deviation = 2.78), out of a maximum of 10. Distress was reported among 67.9% ( = 55) of caregivers. The cognitive domain of caregiving problems on the DT-P was found to correlate with distress. Parents most frequently reported cognitive problems ( = 21, 25.9%) and, least often, social problems ( = 6, 7.4%). Practical ( = 0.040), emotional ( = 0.001), physical ( = 0.026), and cognitive problems ( = 0.001) of caregiving were statistically significantly associated with distress.
Notable levels of distress and proportions of distressed parents highlighted the heavy burden of caregiving. This may also be attributed to the differences in caregiving challenges. The psychological effects of parental caregiving highlight the need for supportive measures for pediatric cancer caregivers.
本研究旨在确定新加坡儿科癌症患者的家长照料者的苦恼程度及相关影响因素。
在这项描述性相关性研究中，通过便利抽样的方式，在患儿住院或门诊就诊期间招募家长照料者。要求他们完成一份自填式人口统计学调查问卷以及《家长苦恼温度计》（DT-P）工具。进行了描述性统计、卡方检验和相关性分析。
DT-P的平均得分是5.07（标准差 = 2.78），满分是10分。67.9%（n = 55）的照料者报告有苦恼。发现DT-P上照料问题的认知领域与苦恼相关。家长最常报告认知问题（n = 21，25.9%），最不常报告社会问题（n = 6，7.4%）。照料的实际问题（p = 0.040）、情感问题（p = 0.001）、身体问题（p = 0.026）和认知问题（p = 0.001）与苦恼在统计学上显著相关。
显著的苦恼程度和苦恼家长的比例凸显了照料负担之重。这也可能归因于照料挑战方面的差异。家长照料的心理影响凸显了对儿科癌症照料者采取支持措施的必要性。
