Alokozai Aaron, Bernstein David N, Samuel Linsen T, Kamath Atul F
Tulane University School of Medicine, New Orleans, LA, USA.
University of Rochester School of Medicine and Dentistry, Rochester, NY, USA.
J Patient Exp. 2020 Dec;7(6):920-924. doi: 10.1177/2374373520956870. Epub 2020 Sep 21.
There are limited published studies on patient engagement, including shared decision-making, in adolescents and young adults with complex congenital or post-traumatic hip disorders. Despite the limited number of papers, we aim to clearly summarize what is currently available in the literature using a systematic review approach. We hope this serves as a call to action and catalyst for more work in this field. Future research must focus on awareness of what matters most to patients (values), and the development, implementation, and barriers to the use of decision aids and patient engagement optimization specific to hip disease in young adults.
关于患有复杂先天性或创伤后髋关节疾病的青少年和青年患者参与,包括共同决策,已发表的研究有限。尽管论文数量有限,但我们旨在使用系统综述方法清晰地总结目前文献中的可用内容。我们希望这能成为该领域更多工作的行动呼吁和催化剂。未来的研究必须聚焦于了解对患者最重要的是什么(价值观),以及针对青年成人髋关节疾病的决策辅助工具的开发、实施和使用障碍,还有患者参与优化。