Oser Sean M, Oser Tamara K
Department of Family Medicine, University of Colorado School of Medicine, Aurora, CO, USA.
J Patient Exp. 2020 Dec;7(6):957-963. doi: 10.1177/2374373520975726. Epub 2020 Nov 25.
Social media increasingly reflects patient experience, especially for self-managed conditions. We examined family experience with type 1 diabetes (T1D) through qualitative analysis of blogs written by caregivers of children with T1D, survey derived from that analysis, and survey administration among T1D caregivers. Analysis of 140 blog posts and 663 associated comments identified 77 topics, which were categorized into self-management, emotional, challenges, and successes. By subcategory analysis, self-management challenges were strongly correlated between blog content and survey responses ( = .838, = .005), and emotional challenges were moderately correlated ( = .415, = .02). Emotional successes were not significantly correlated ( = .161, = .511), and self-management successes were too few to analyze. The range of topics and the correlations between blog expressions and survey responses highlight the potential of blog analysis to gain insight into the challenges facing families living with T1D.
社交媒体越来越多地反映患者的经历,尤其是对于自我管理的疾病。我们通过对1型糖尿病(T1D)患儿护理人员撰写的博客进行定性分析、基于该分析得出的调查以及对T1D护理人员进行的调查管理,来研究家庭在T1D方面的经历。对140篇博客文章和663条相关评论的分析确定了77个主题,这些主题被分为自我管理、情感、挑战和成功四类。通过子类别分析,博客内容与调查回复之间自我管理挑战的相关性很强(r = 0.838,p = 0.005),情感挑战的相关性中等(r = 0.415,p = 0.02)。情感成功的相关性不显著(r = 0.161,p = 0.511),自我管理成功的案例太少无法进行分析。主题范围以及博客表达与调查回复之间的相关性凸显了博客分析在深入了解T1D患者家庭所面临挑战方面的潜力。