Tang Tricia S, Sharif Niloufar, Ng Crystal, McLean Logan, Klein Gerri, Amed Shazhan
Department of Medicine, Faculty of Medicine, University of British Columbia, Vancouver, BC V5Z 1M9, Canada.
T1D Huddle Gordon & Leslie Diamond Health Care Centre, Vancouver, BC V5Z 1M9, Canada.
Children (Basel). 2024 Sep 12;11(9):1114. doi: 10.3390/children11091114.
We examined the feasibility, acceptability, and potential mental health impact of a digital peer support intervention involving videoconferencing and text-based support for parents of school-aged children living with T1D and analyzed posts exchanged by parents on a texting platform. Eighteen parents were recruited for Huddle4Parents, a 4-month digital intervention that involved four synchronous group-based Zoom sessions coupled with an asynchronous 24/7 peer support texting room. Primary outcomes were feasibility (i.e., ability to recruit = 20 parents and retain at least 75%) and acceptability (i.e., satisfaction ratings of "good" to "very good"). Baseline and 4-month assessments also measured diabetes distress, quality of life, and perceived support. A content analysis of text exchanges was also performed. All 15 parents who completed the intervention attended at least one Huddle and posted at least one message on the 24/7 peer support room. The retention rate was 83%, with 100% indicating that they would "definitely" or "probably yes" recommend both platforms to other parents. They also rated the topics, facilitator, and overall Huddles as "good" to "excellent." No changes were observed for psychosocial endpoints. Of the 1084 texts posted, core support themes included the following: (1) dealing with technology and devices; (2) seeking and providing emotional support; (3) managing T1D in the school setting; and (4) exchanging tips and strategies. Huddle4Parents, a digital T1D caregiver intervention offering synchronous and asynchronous support, is feasible based on recruitment, participation, and attrition rates and acceptable as demonstrated by engagement and satisfaction ratings for the Huddles and 24/7 peer support room.
我们研究了一种数字同伴支持干预措施的可行性、可接受性及其对心理健康的潜在影响。该干预措施通过视频会议和基于文本的支持,为患有1型糖尿病(T1D)的学龄儿童的家长提供帮助,并分析了家长们在一个短信平台上交流的帖子。我们招募了18名家长参与“家长互助圈”(Huddle4Parents)项目,这是一项为期4个月的数字干预项目,包括四次基于小组的同步Zoom会议,以及一个全天候的异步同伴支持短信室。主要结果指标包括可行性(即招募20名家长并至少保留75%的能力)和可接受性(即从“好”到“非常好”的满意度评分)。基线和4个月时的评估还测量了糖尿病困扰、生活质量和感知到的支持。我们还对短信交流内容进行了分析。所有15名完成干预的家长都至少参加了一次互助圈会议,并在全天候同伴支持室发布了至少一条消息。留存率为83%,100%的家长表示他们“肯定会”或“很可能会”向其他家长推荐这两个平台。他们还将主题、主持人和整个互助圈会议评为“好”到“优秀”。心理社会终点指标未观察到变化。在发布的1084条短信中,核心支持主题包括:(1)应对技术和设备;(2)寻求和提供情感支持;(3)在学校环境中管理1型糖尿病;(4)交流提示和策略。“家长互助圈”是一项为1型糖尿病照护者提供同步和异步支持的数字干预措施,从招募、参与和流失率来看是可行的,并且从互助圈会议和全天候同伴支持室的参与度和满意度评分可以看出是可接受的。