Robinson Jamie R, Anders Shilo H, Novak Laurie L, Simpson Christopher L, Holroyd Lauren E, Bennett Kelly A, Jackson Gretchen P
Department of Surgery, Vanderbilt University Medical Center, 1161 21st Ave S, CCC-4312 MCN, Nashville, Tennessee 37232-2730, USA.
Department of Biomedical Informatics, Vanderbilt University Medical Center, 2525 West End, Suite 14107, Nashville, Tennessee 37203, USA.
JAMIA Open. 2018 Jul;1(1):57-66. doi: 10.1093/jamiaopen/ooy018. Epub 2018 Jun 18.
To build effective applications, technology designers must understand consumer health needs. Pregnancy is a common health condition, and expectant families have unanswered questions. This study examined consumer health-related needs in pregnant women and caregivers and determined the types of needs that were not met.
We enrolled pregnant women <36 weeks' gestational age and caregivers from advanced maternal-fetal and group prenatal care settings. Participant characteristics were collected through surveys, and health-related needs were elicited in semi-structured interviews. Researchers categorized needs by semantic type and whether they were met (ie, met, partially met, or unmet). Inter-rater reliability was measured by Cohen's kappa.
Seventy-one pregnant women and 29 caregivers participated and reported 1054 needs, 28% unmet, and 49% partially met. Need types were 66.2% informational, 15.9% logistical, 8.9% social, 8.6% medical, and 0.3% other. Inter-rater reliability was near perfect (=0.95, < 0.001).
Common topics of unmet needs were prognosis, life management, and need for emotional support. For pregnant women, these unmet needs focused around being healthy, childbirth, infant care, and being a good mother; caregivers' needs involved caring for the mother, the natural course of pregnancy, and life after pregnancy.
Pregnant women and caregivers have a rich set of health-related needs with many not fully met. Caregivers' needs differed from those of pregnant women and may not be adequately addressed by resources designed for mothers. Many unmet needs involved stress and life management. Knowledge about consumer health needs can inform the design of better technologies for pregnancy.
为构建有效的应用程序,技术设计师必须了解消费者的健康需求。怀孕是一种常见的健康状况,而准父母家庭有一些未得到解答的问题。本研究调查了孕妇及其护理人员与健康相关的需求,并确定了未得到满足的需求类型。
我们招募了孕周小于36周的孕妇以及来自高级母胎医学和团体产前护理机构的护理人员。通过调查问卷收集参与者的特征,并通过半结构化访谈了解与健康相关的需求。研究人员按语义类型以及需求是否得到满足(即得到满足、部分得到满足或未得到满足)对需求进行分类。采用Cohen's kappa系数测量评分者间信度。
71名孕妇和29名护理人员参与了研究,共报告了1054项需求,其中28%未得到满足,49%部分得到满足。需求类型中,信息类占66.2%,后勤类占15.9%,社交类占8.9%,医疗类占8.6%,其他类占0.3%。评分者间信度近乎完美(κ=0.95,P<0.001)。
未得到满足的需求的常见主题包括预后、生活管理以及情感支持需求。对于孕妇而言,这些未得到满足的需求集中在保持健康、分娩、婴儿护理以及成为一名好母亲方面;护理人员的需求则涉及照顾母亲、怀孕的自然过程以及产后生活。
孕妇及其护理人员有一系列丰富的与健康相关的需求,其中许多需求未得到充分满足。护理人员的需求与孕妇不同,为母亲设计的资源可能无法充分满足这些需求。许多未得到满足的需求涉及压力和生活管理。了解消费者的健康需求可为设计更好的孕期技术提供参考。