Turell Wendy, Roc Anne, Pioro Erik, Howson Alexandra
CME Outcomes and Analytics, PlatformQ Health Education, Needham, MA, USA.
Medical Education and Strategy, PlatformQ Health Education, Needham, MA, USA.
J Patient Exp. 2020 Dec;7(6):1324-1330. doi: 10.1177/2374373519899597. Epub 2020 Mar 2.
Pseudobulbar affect (PBA) is associated with several neurological diseases and is underrecognized in clinical practice; however, PBA symptoms are often attributed to psychiatric or mood disorders rather than to neurological etiology. Until recently, there were no US Food and Drug Administration therapies approved for treating this condition, and there are currently few resources to support patients in the recognition and self-management of PBA symptoms. We evaluated the impact of a virtual education symposium on patient knowledge and self-efficacy via qualitative interviews. This evaluation of education impact provides unique insight into the experience of managing PBA symptoms; suggests that there is extensive need for educational resources to support patients with PBA and enable them to engage effectively with their providers; and affirms that online learning is an effective mechanism for delivering education to patients that enables them to more effectively self-manage symptoms in the context of chronic neurological conditions such as PBA.
假性球麻痹（PBA）与多种神经系统疾病相关，在临床实践中未得到充分认识；然而，PBA症状通常归因于精神或情绪障碍，而非神经病因。直到最近，美国食品药品监督管理局仍未批准用于治疗这种疾病的疗法，目前也几乎没有资源支持患者认识和自我管理PBA症状。我们通过定性访谈评估了虚拟教育研讨会对患者知识和自我效能的影响。这种对教育影响的评估为管理PBA症状的经验提供了独特见解；表明迫切需要教育资源来支持PBA患者，并使他们能够与医疗服务提供者有效互动；并确认在线学习是向患者提供教育的有效机制，使他们能够在诸如PBA等慢性神经系统疾病的背景下更有效地自我管理症状。
