Richard Julie, Azar Rima, Doucet Shelley, Luke Alison
Psychobiology of Stress & Health Lab and NaviCare/SoinsNavi, Mount Allison University, New Brunswick, Canada.
Department of Nursing and Health Sciences and NaviCare/SoinsNavi, University of New Brunswick, Saint John, Canada.
J Patient Exp. 2020 Dec;7(6):1476-1481. doi: 10.1177/2374373520902663. Epub 2020 Feb 7.
Patient and family engagement is increasingly recognized in the care of children with complex health conditions. Through the implementation of Patient and Family Advisory Councils (PFACs), health-care institutions are working to improve patient care by nurturing partnerships among patients/families, managers, and clinicians. Despite the potential for PFACs, empirical research about their implementation remains scarce.
To address this gap, this study explored the recruitment, retention, and implementation strategies used by Canadian PFACs.
We used a qualitative descriptive design.
We interviewed 10 spokespersons from Canadian PFACs.
We found themes within 2 stages of implementation. The first stage, getting PFACs started, included 4 themes: (1) using evolving recruitment methods, (2) preparing for effective participation, (3) ensuring diversity within PFACs, and (4) preparing terms of reference. The second stage involved strategies to support ongoing PFACs implementation and included 1 overall theme: facilitating optimal PFACs participation. The underlying link between themes was that establishing/maintaining PFACs is an ongoing learning curve.
Our findings have the potential to inform new and existing PFACs.
在患有复杂健康状况的儿童护理中，患者及家庭参与日益受到认可。通过设立患者及家庭咨询委员会（PFACs），医疗机构正努力通过培育患者/家庭、管理人员和临床医生之间的伙伴关系来改善患者护理。尽管PFACs具有潜力，但关于其实施的实证研究仍然匮乏。
为填补这一空白，本研究探讨了加拿大PFACs所采用的招募、留存和实施策略。
我们采用了定性描述性设计。
我们采访了来自加拿大PFACs的10位发言人。
我们在实施的两个阶段中发现了主题。第一阶段，启动PFACs，包括4个主题：（1）采用不断演变的招募方法，（2）为有效参与做准备，（3）确保PFACs内部的多样性，以及（4）制定职权范围。第二阶段涉及支持PFACs持续实施的策略，包括1个总体主题：促进PFACs的最佳参与。这些主题之间的潜在联系在于，建立/维持PFACs是一个持续的学习过程。
我们的研究结果有可能为新的和现有的PFACs提供参考。
