Montalbano Amanda, Chadwick Sheryl, Miller DeeJo, Taff Kathryn, De Miranda Evelyn Donis, Pina Kimberly, Bradley-Ewing Andrea
Patient and Family Engagement, Children's Mercy Kansas City, MO, USA.
University of Missouri-Kansas City School of Medicine, MO, USA.
J Patient Exp. 2021 Nov 5;8:23743735211049680. doi: 10.1177/23743735211049680. eCollection 2021.
Patient Family Advisory Councils (PFACs) are groups of patients, families, and clinical health system leaders collaborating to improve the quality, safety, and experience of care. Best practices encourage PFAC membership to reflect the diversity of the communities served. A cross-sectional survey was conducted from September 2019 to January 2020 collecting demographic characteristics of the members of a pediatric health system's 17 PFACs. Of the 93 respondents (71.5%), notable inequities were racial (4.8% adult PFAC members vs. 17.4% patients were Black) and financial (adult PFAC median annual income was >$100,000 compared to the community median $77,589). The governing family advisory board used this information to codesign interventions to achieve the ideal state of inclusive excellence by identifying barriers for participation for the Black community, recruiting and retaining diverse board members, and continuous monitoring to maintain a diverse board representation.
患者家庭咨询委员会（PFACs）是由患者、家属和临床医疗系统领导者组成的团体，他们共同合作以提高医疗质量、安全性和就医体验。最佳实践鼓励PFAC的成员构成能够反映所服务社区的多样性。2019年9月至2020年1月进行了一项横断面调查，收集了一家儿科医疗系统17个PFAC成员的人口统计学特征。在93名受访者中（占71.5%），存在明显的不平等现象，包括种族方面（成年PFAC成员中黑人占4.8%，而患者中黑人占17.4%）和经济方面（成年PFAC成员的年中位数收入超过10万美元，而社区中位数为77,589美元）。管理家庭咨询委员会利用这些信息共同设计干预措施，通过识别黑人社区参与的障碍、招募和留住多元化的委员会成员以及持续监测以维持多元化的委员会代表性，来实现包容性卓越的理想状态。
