Author Affiliations: Assistant Professors (Drs Harrison and Duong), Associate Professor (Dr Anderson), Professor (Dr Auerbach), and Project Manager (Ms Chen), Division of Hospital Medicine, University of California San Francisco; Chief Experience Officer (Dr Fagan) and Director of Patient and Family Advisory Councils (Ms Hanson), University of Miami Health System, Florida; Chief Transformation Officer and Vice President (Dr Robinson), Christiana Care Health System, Wilmington, Delaware; Associate Professor (Dr Schnipper), Department of Medicine, Brigham & Women's Hospital, Boston, Massachusetts; Patient and Family Advisory Council Members (Ms Symczak and Mr Banta), Intensive Care Unit Patient & Family Advisory Council, University of California San Francisco; and Senior Patient Advisor (Ms Carnie) and Project Manager (Ms Wong), Center for Patients and Families, Brigham & Women's Hospital, Boston, Massachusetts.
J Nurs Adm. 2019 Oct;49(10):473-479. doi: 10.1097/NNA.0000000000000790.
To describe strategies to recruit and support members from hard-to-reach groups on research-focused Patient and Family Advisory Councils (PFACs).
Ensuring diverse representation of members of research PFACs is challenging, and few studies have given attention to addressing this problem.
A qualitative study was conducted using 8 focus groups and 19 interviews with 80 PFAC members and leaders, hospital leaders, and researchers.
Recruitment recommendations were: 1) utilizing existing networks; 2) going out to the community; 3) accessing outpatient clinics; and 4) using social media. Strategies to support inclusion were: 1) culturally appropriate communication methods; 2) building a sense of community between PFAC members; 3) equalizing roles between community members/leaders; 4) having a diverse PFAC leadership team; and 5) setting transparent expectations for PFAC membership.
Increasing the diversity of research PFACs is a priority, and it is important to determine how best to engage groups that have been traditionally underrepresented.
描述针对以研究为重点的患者和家庭咨询委员会（PFAC）中难以接触到的群体的招募和支持成员的策略。
确保研究 PFAC 成员的多样化代表具有挑战性，很少有研究关注解决这个问题。
采用定性研究方法，对 80 名 PFAC 成员和领导者、医院领导和研究人员进行了 8 个焦点小组和 19 次访谈。
招募建议包括：1）利用现有网络；2）走向社区；3）访问门诊；4）使用社交媒体。支持包容性的策略包括：1）使用文化上合适的沟通方法；2）在 PFAC 成员之间建立社区意识；3）平等化社区成员/领导者之间的角色；4）拥有多元化的 PFAC 领导团队；5）为 PFAC 成员设定透明的期望。
增加研究 PFAC 的多样性是当务之急，重要的是要确定如何最好地吸引传统上代表性不足的群体。
