J Pediatr Health Care. 2024 Mar-Apr;38(2):184-193. doi: 10.1016/j.pedhc.2023.11.006.
This qualitative research study explored practices that support and advance diverse membership in Patient and Family Advisory Councils (PFACs) in children's hospitals and the involvement of PFACs in organization-level diversity, equity, and inclusion work.
This study consisted of a focused literature review and 17 key informant interviews. The study sought to identify important learnings about (1) recruiting and supporting patient and family advisors (PFAs) from historically marginalized populations and (2) ways to develop and sustain meaningful partnerships with PFAs and PFACs in diversity, equity, and inclusion work.
The study findings highlighted a number of best practices for hospitals to adopt, including more actively reaching out to communities served, addressing barriers to participation through approaches and structures such as specialty PFACs and "tiered" options for participation by PFAs, and co-creation of inclusive environments.
To move forward with this work, additional research, true commitment from health care organizations, and shared guidance and tools for the field are needed.
本定性研究探讨了支持和促进儿童医院患者和家庭咨询委员会（PFACs）多元化成员构成的实践，以及 PFACs 参与组织层面多样性、公平性和包容性工作的情况。
本研究包括重点文献回顾和 17 名关键意见访谈。该研究旨在确定有关以下方面的重要经验教训：（1）从历史上处于边缘地位的人群中招募和支持患者和家庭顾问（PFAs）；（2）与 PFAs 和 PFACs 建立和维持多样性、公平性和包容性工作方面的有意义的伙伴关系的方法。
研究结果强调了医院可以采用的一些最佳实践，包括更积极地与服务社区接触，通过专门的 PFACs 和 PFA 参与的“分层”选择等方法和结构来解决参与障碍，并共同创造包容性环境。
要推进这项工作，需要更多的研究、医疗机构的真正承诺，以及为该领域提供共享的指导和工具。
